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Real-World Experiences in Autistic Adult Diagnostic Services and Post-diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study

descriptionPublicationkeyboard_double_arrow_right Article , Other literature type 27 Jan 2021 France, Germany, United Kingdom, Finland, Spain, Italy, Finland, Germany, Denmark English Publisher:Springer Science and Business Media LLCJournal:Journal of Autism and Developmental Disorders, volume 51, pages 4,129-4,146 (issn: 0162-3257, eissn: 1573-3432, Copyright policy )Publicly funded
Authors: Scattoni M. L.; Micai M.; Ciaramella A.; Salvitti T.; Fulceri F.; Fatta L. M.; Poustka L.; +32 Authors

doi: 10.1007/s10803-021-04873-5

pmid: 33502713

pmc: PMC8510906

handle: 10366/161936 , 20.500.12105/12024 , 10138/340133 , 11573/1498945

Real-World Experiences in Autistic Adult Diagnostic Services and Post-diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study

Abstract

AbstractResearch providing an evidence-base for autistic adult services is sparse. The Autism Spectrum Disorders in the European Union (ASDEU) network implemented an on-line survey to determine gaps in autistic adult diagnostic evaluation and post-diagnostic support services. More than 55% in all groups experienced most of the recommended features for diagnostic evaluation for autistic adults. In contrast, < 2% of adults or carers, and < 21% of professionals experienced each of the recommended features for post-diagnostic support. In contrast to 61% of professionals, only about 30% of autistic adults and carers had knowledge of good local services models for autism diagnosis in adulthood. There are major differences between good practice guidelines for diagnostic and post-diagnostic care for autistic adults, and what is actually experienced by services users and professionals.

Countries
France, Germany, United Kingdom, Finland, Spain, Italy, Finland, Germany, Denmark
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Keywords

Adult, Adults; autism spectrum disorder; diagnosis; services, 3201.05 Psicolog?a Cl?nica, Social Problems, Social Determinants of Health, Uni?n Europea, Autism Spectrum Disorder, humanos, 150, Services, 610, trastorno autístico, 6112 Estudio Psicol?gico de Temas Sociales, 3201.05 Psicología Clínica, Unión Europea, trastorno aut?stico, Surveys and Questionnaires, psicolog?a aplicada, Diagnosis, Psychology, Adults, Humans, European Union, Autism spectrum disorder, Autistic Disorder, 6112 Estudio Psicológico de Temas Sociales, Original Paper, determinantes sociales de la salud, adulto, Diagnostic Services, ta3124, psicología aplicada, [SDV.SPEE]Life Sciences [q-bio]/Santé publique et épidémiologie, problemas sociales, Psychology, Applied

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selected citations
These citations are derived from selected sources.
This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Citations provided by BIP!
popularity
This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
BIP!Popularity provided by BIP!
influence
This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Influence provided by BIP!
impulse
This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
BIP!Impulse provided by BIP!
29
Top 10%
Top 10%
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