
handle: 1866/10939
The Connected Self: The Ethics and Governance of the Genetic Individual met les lecteurs au défi de réfléchir à la fois à la complexité des enjeux sociaux et scientifiques liés à la recherche sur le génome humain et à leur influence sur les conceptions du soi. L’auteure, Heather Widdows, propose que les principes courants de la bioéthique (gouvernant la recherche biomédicale) ne reflètent pas suffisamment l’interaction des individus avec leurs communautés et les réseaux sociaux. Selon elle, la reconnaissance de telles interactions dans la compréhension de la génétique et de la santé est nécessaire afin que les politiques protègent réellement les participants des dommages qui pourraient en résulter.
The Connected Self: The Ethics and Governance of the Genetic Individual challenges readers to engage in both the social and scientific complexities of researching the human genome, and how they influence evolving conceptions of the self. Heather Widdows proposes that the existing principles of bioethics, which govern biomedical research, insufficiently reflect the interactions of individuals to their communities and social networks, and argues that recognition of such interactions in understanding genetics and health is necessary for policies to effectively safeguard research participants from harms that may result.
Compte-rendu / Review
gouvernance, research ethics, Social Sciences, H, génétique, éthique de la recherche, governance, boîte à outils, toolbox, genetics, autonomie, autonomy
gouvernance, research ethics, Social Sciences, H, génétique, éthique de la recherche, governance, boîte à outils, toolbox, genetics, autonomie, autonomy
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