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CONICET Digital
Article . 2021
License: CC BY
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Características del tratamiento recibido por los niños con fisura labio alvéolo palatina en el subsector público en Argentina

Authors: Cipolla, Maria Cristina; Piola, Agustina; Barbero, Pablo Miguel; Groisman, Boris; Bidondo, Maria Paz; Chuit, Roberto; Liascovich, Rosa;

Características del tratamiento recibido por los niños con fisura labio alvéolo palatina en el subsector público en Argentina

Abstract

Cleft lip and palate (CLP) are congenital abnormalities that affect anatomically and functionally the face and mouth, involving lip (CL), palate (CP), or both (CL/CP). Objective: to characterize the treatment of children with CLP in public institutions in Argentina. Patients and Method: Crosssectional study in a random sample of 100 children from the Flap Network. We included children with isolated CL, CP, and CL/CP, of both sexes, with birth weight of 2500 grams or more and gestational age over 36 weeks. The following data were recorded date of birth, hospital of birth, birth weight, gestational age, sex, specific diagnosis of the cleft, and initial surgery data. A telephone survey was conducted with the children’s parents. To characterize the treatment, three indicators were constructed: interdisciplinary, opportunity, and integrality. These indicators were composed of different variables, and according to the sum of the score attributed to each one, the treatment was categorized as high, medium or low based on the treatment guidelines used by the Sumar Program. Results: 30% of the patients started early treatment, 58% underwent timely surgery, and 29% of the children were in follow-up with basic specialties. The mother’s high educational level was associated with higher probability of having interdisciplinary (OR2.9; 95%CI 1.3-6.8), comprehensive (OR3.7; 95%CI 1.6- 8.7), and timely treatment (OR2.9; 95%CI 1.3-6.7). Conclusions: There are barriers to accessing care, such as long distances or shift management. Less social vulnerability of families was associated with greater likelihood of receiving treatment close to standards.

Las fisuras labio palatinas (FLAP) son anomalías congénitas que afectan anatómica y funcionalmentela cara y boca, comprometiendo labio (FL), paladar (FP), o ambos (FL/FP). Objetivo: caracterizar eltratamiento de niños con FLAP en instituciones públicas en Argentina. Pacientes y Método: Estudiotransversal en muestra aleatoria de 100 niños de la Red Flap. Se incluyeron niños con FL, FP y FL/FPaisladas, de ambos sexos, con peso nacimiento de 2500 gramos o más y edad gestacional mayor a 36semanas. Se reportó fecha de nacimiento, hospital de nacimiento, peso nacimiento, edad gestacional,sexo, diagnóstico específico de la fisura, y datos de la cirugía inicial. Se realizó una encuesta telefónicaa los progenitores de los niños. Para caracterizar el tratamiento se construyeron tres indicadores: interdisciplina,oportunidad e integralidad, que se compusieron de diferentes variables y según la sumadel puntaje atribuido a cada una, se categorizó en: alto, medio o bajo según las pautas de tratamientoque usa el Programa Sumar. Resultados: Iniciaron tratamiento precoz el 30%. El 58% se operó oportunamente e hicieron seguimiento con las especialidades básicas el 29% de los niños. El alto niveleducativo materno se asoció con mayor probabilidad de tener tratamiento interdisciplinario (OR2,9;IC95% 1,3-6,8), integral (OR3,7; IC95% 1,6-8,7) y oportuno (OR2,9; IC95% 1,3-6,7). Conclusiones:Existen barreras para acceder a la atención, como las grandes distancias o la gestión de los turnos. Lamenor vulnerabilidad social de las familias se asoció con mayor probabilidad de recibir un tratamientocercano a los estándares.

Fil: Liascovich, Rosa. Ministerio de Salud. Centro Nacional de Genética Médica. Red Nacional de Anomalías Congénitas; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina

Fil: Groisman, Boris. Ministerio de Salud. Centro Nacional de Genética Médica. Red Nacional de Anomalías Congénitas; Argentina. Consejo Nacional de Investigaciones Científicas y Técnicas; Argentina

Fil: Barbero, Pablo Miguel. Ministerio de Salud. Centro Nacional de Genética Médica. Red Nacional de Anomalías Congénitas; Argentina

Fil: Bidondo, Maria Paz. Ministerio de Salud. Centro Nacional de Genética Médica. Red Nacional de Anomalías Congénitas; Argentina

Fil: Piola, Agustina. Ministerio de Salud. Centro Nacional de Genética Médica. Red Nacional de Anomalías Congénitas; Argentina

Fil: Chuit, Roberto. Academia Nacional de Medicina de Buenos Aires. Instituto de Investigaciones Epidemiológicas; Argentina

Fil: Cipolla, Maria Cristina. Ministerio de Salud de la Nación; Argentina

Country
Argentina
Keywords

ARGENTINA, https://purl.org/becyt/ford/3.3, https://purl.org/becyt/ford/3, TRATAMIENTO, FISURAS LABIOPALATINAS

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selected citations
These citations are derived from selected sources.
This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Citations provided by BIP!
popularity
This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
BIP!Popularity provided by BIP!
influence
This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Influence provided by BIP!
impulse
This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
BIP!Impulse provided by BIP!
0
Average
Average
Average
Green