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https://dx.doi.org/10.34669/wi...
Article . 2023
License: CC BY
Data sources: Datacite
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Drawing as a Facilitator of Critical Data Discourse: Reflecting on Problems with Digital Health Data Through Expressive Visualizations of the Unseen Body Landscape

Reflecting on Problems with Digital Health Data Through Expressive Visualizations of the Unseen Body Landscape
Authors: Kuksenok, Kit; De Maeyer, Christel; Lee, Minha;

Drawing as a Facilitator of Critical Data Discourse: Reflecting on Problems with Digital Health Data Through Expressive Visualizations of the Unseen Body Landscape

Abstract

In a 1.5-hour workshop, we used drawing and self-reflection prompts to facilitate a value-driven discussion of personal and institutional data practices. Activities included mark-making in time with one’s heartbeat, creating an inventory of one’s personal data, and creating a qualitative personal health visualization. This article details the workshop structure and exercises and includes a summary of the discussion, which constructively encompassed both the empowering and the uncomfortable aspects of digital health data collection in a constructive manner. The workshop’s design used the format of hands-on, expressive drawing activities to enable participants to achieve depth and breadthin a relatively short discussion about personal health, data autonomy, institutional trust, and consent.Critical discourse about data, especially health data, is a valuable experience for every person whose health data has been or is being collected; and approaches that take personal data as a starting point can support the practice of digital/data sovereignty more broadly.

Country
Netherlands
Keywords

data protection, digital health; data visualization; data ethics; self-tracking, Datenerfassung, health care delivery system, data acquisition, Gesundheitswesen, Visualisierung, Datenschutz, visualization

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selected citations
These citations are derived from selected sources.
This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Citations provided by BIP!
popularity
This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
BIP!Popularity provided by BIP!
influence
This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Influence provided by BIP!
impulse
This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
BIP!Impulse provided by BIP!
0
Average
Average
Average
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