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An important task of modern pediatric neurology is to increase the effectiveness of treatment of epilepsy in children. Traditional criteria for assessing the effectiveness of treatment, based on the indicators of laboratory and instrumental studies, reflect only the biological component of the picture of the disease and it is necessary to apply a criterion for assessing the state of other basic functions of the child.The purpose. To identify the most significant social and psychological problems and aspects of the lives of children and adolescents with epilepsy, depending on the effectiveness of treatment (children with controlled and uncontrolled attacks) from the point of view of patients, their parents and health care professionals, and raising awareness of the sub- the issues related to this state to improve the quality of care for this group of patients to lead a better life.Materials and methods. Surveys on social, psycho-emotional factors of life of children with epilepsy with controlled and uncontrolled attacks were conducted during 1 year with the help of questionnaires for 3 groups of respondents: children and adolescents from 12 to 18 years old, patients with epilepsy, their parents and the medical staff who are in contact with children with epilepsy in their work, the statistical processing of the received data is carried out.Results. The study showed the main factors influencing the lives of children with epilepsy from the point of view of patients themselves, their parents and health professionals. These are social (the opportunity to attend school, communicate with peers, get education and employment in the future) and psycho-emotional (fear of their illness, its concealment from others, difficulty in learning) factors.Conclusions. Most children with uncontrolled attacks receive home-schooling, miss 25.37±2.17 days of schooling, have problems communicating with new people, friends, less self-confident. More than a third of the respondents were informed about problems with memory, concentration and difficulties with math. A common problem for children with epilepsy and their parents is the fear of the future: the opportunity to get education and employment. Parents are concerned about further independent life. For children with uncontrolled attacks, their parents and health workers, the top priority is the effectiveness of treatment - overcoming attacks and the ability to lead an active social life. The complication between patients, their parents and doctors is higher in a group of children with controlled attacks
епілепсія; діти; соціальні та психологічні фактори; проблеми та аспекти життя, epilepsy; children; social and psychological factors; problems and aspects of life, эпилепсия; дети; социальные и психологические факторы; проблемы и аспекты жизни, УДК 616.853-053.2:613.95
епілепсія; діти; соціальні та психологічні фактори; проблеми та аспекти життя, epilepsy; children; social and psychological factors; problems and aspects of life, эпилепсия; дети; социальные и психологические факторы; проблемы и аспекты жизни, УДК 616.853-053.2:613.95
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