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Experiencias y cambios en los padres de niños con parálisis cerebral infantil: estudio cualitativo

Authors: Fernández-Alcántara, M.; García-Caro, M.P.; Berrocal-Castellano, M.; Benítez, A.; Robles-Vizcaíno, C.; Laynez-Rubio, C.;

Experiencias y cambios en los padres de niños con parálisis cerebral infantil: estudio cualitativo

Abstract

Fundamento. El diagnóstico de parálisis cerebral infantil (PCI) supone un evento de carácter traumático que puede provocar una multitud de efectos y cambios en el entorno familiar. Se pretende conocer cuáles son las principales dificultades que encuentran los padres en el proceso de parentalidad, especialmente en los primeros momentos tras el diagnóstico. Método. Se realizó un estudio fenomenológico de carácter cualitativo a través de entrevistas semi-estructuradas. Participaron 16 padres y madres cuyos hijos estaban diagnosticados de PCI. El análisis de los datos se llevó a cabo con el software Atlas.ti6.2 a través de una codificación abierta. Resultados. La recepción de la noticia es percibida como un acontecimiento inesperado que obliga a restructurar las expectativas con respecto a su hijo. La forma de relacionarse con el hijo con PCI es diferente a la que se establece con otros niños, centrándose sobre todo en las posibilidades de mejora y en la evolución de su hijo en el futuro. Se observan cambios en diferentes aspectos de la vida de estos padres como el tiempo, la situación económica y laboral, así como las relaciones de pareja. Conclusiones. En la atención a niños con PCI es necesario incorporar y tomar en cuenta la problemática de los padres, especialmente en los primeros momentos del diagnóstico. El proceso de crianza de un hijo con PCI conlleva un gran número de cambios en la dinámica familiar por lo que se necesita abordarlos mediante una perspectiva global.

Keywords

Medical Subject Headings::Named Groups::Persons::Parents, Family caregiving, Medical Subject Headings::Named Groups::Persons::Age Groups::Child::Child, Preschool, Artículos originales, Medical Subject Headings::Named Groups::Persons::Age Groups::Child, Medical Subject Headings::Check Tags::Female, Medical Subject Headings::Organisms::Eukaryota::Animals::Chordata::Vertebrates::Mammals::Primates::Haplorhini::Catarrhini::Hominidae::Humans, Medical Subject Headings::Check Tags::Male, Cuidados familiares, Parálisis cerebral. Padres. Estudio cualitativo. Duelo., Parent, Medical Subject Headings::Psychiatry and Psychology::Behavior and Behavior Mechanisms::Psychology, Social::Life Style::Life Change Events, Qualitative research, Medical Subject Headings::Named Groups::Persons::Age Groups::Adult, Medical Subject Headings::Disciplines and Occupations::Natural Science Disciplines::Science::Research::Empirical Research::Qualitative Research, Padres, Cerebral palsy, Parálisis cerebral, Medical Subject Headings::Diseases::Nervous System Diseases::Central Nervous System Diseases::Brain Diseases::Brain Damage, Chronic::Cerebral Palsy, Estudio cualitativo

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    influence
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selected citations
These citations are derived from selected sources.
This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Citations provided by BIP!
popularity
This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
BIP!Popularity provided by BIP!
influence
This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Influence provided by BIP!
impulse
This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
BIP!Impulse provided by BIP!
9
Top 10%
Top 10%
Average
Green
gold