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The data life cycle in 1+MG (v1.0) - version for 1+MG Framework

Authors: Becker, Regina; Thorogood, Adrian; Rebers, Susanne;

The data life cycle in 1+MG (v1.0) - version for 1+MG Framework

Abstract

The documents are built on the 1+MG Glossary. In particular, the following expressions are used: ● Metadata: a set of data that describes and gives information about other data. Metadata do not include any data that are processed to produce any results of the data use such as health or genetic data. Metadata can be personal data where they contain information on the subject level (e.g. consent decisions of an individual data subject) ● Data collections: Data collections are data that come from the same collection context from the same controller(s) and can be characterised with non-personal metadata. A data collection can e.g. refer to data of a cohort or a public registry. ● Records: Data related to individual data subjects ● Data set: Data that are grouped in a certain context, e.g. for a user’s access. ● Enriched data: data where additional information is added, e.g. annotations ● Derived data: data that have been created by alteration of the original data (e.g. through data curation)

Keywords

B1MG, ELSI, 1+MG, Data life cycle, 1 Million Genomes Initiative, Beyond 1 Million Genomes

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selected citations
These citations are derived from selected sources.
This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Citations provided by BIP!
popularity
This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
BIP!Popularity provided by BIP!
influence
This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Influence provided by BIP!
impulse
This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
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