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Dataset from: Reporting of patient involvement: A mixed-methods analysis of current practice in health research publications

Authors: Weschke, Sarah; Franzen, Delwen; Sierawska, Anna; Bonde, Lea-Sophie; Strech, Daniel; Schorr, Susanne Gabriele;

Dataset from: Reporting of patient involvement: A mixed-methods analysis of current practice in health research publications

Abstract

This record includes the data associated with the study "Reporting of patient involvement: A mixed-methods analysis of current practice in health research publications". In this study, we evaluated the extent and quality of patient involvement reporting in examples of current practice in health research. We used a targeted search strategy to identify publications that report on patient involvement using the following three samples: Publications published in 2019 in The BMJ, which requires reporting on patient involvement in research articles Publications listed in the PCORI database. We filtered for topic: example of engagement in health research; stakeholder involvement: patients; year: 2019 Publications citing the GRIPP2 reporting checklist or a critical appraisal guideline to assess the quality and impact of user involvement in research After applying our inclusion and exclusion criteria, the final sample consisted of 87 publications that reported on patient involvement. Included publications were coded according to three coding schemes. This deposit includes the following: Overview of publications that did not meet our inclusion criteria across all 3 samples (BMJ, PCORI, and citation) Overview of publications and additional documents (if applicable) that met our inclusion criteria across all 3 samples (BMJ, PCORI, and citation) Coded segments and analysis for the coding scheme "Phase of involvement" across all 3 samples (BMJ, PCORI, and citation). This includes the count of each sub-code across publications and the final results table. Coded segments and analysis for the coding scheme "GRIPP2-SF reporting guidelines according to Staniszewska et al., 2017" across all 3 samples (BMJ, PCORI, and citation). This includes the count of each sub-code across publications and the final results table. Coded segments and analysis for the coding scheme "Critical appraisal tool according to Wright et al., (2010)" across all 3 samples (BMJ, PCORI, and citation). This includes the count of each sub-code across publications and the final results table.

{"references": ["Staniszewska, S., Brett, J., Simera, I., Seers, K., Mockford, C., Goodlad, S., Altman, D. G., Moher, D., Barber, R., Denegri, S., Entwistle, A., Littlejohns, P., Morris, C., Suleman, R., Thomas, V., & Tysall, C. (2017). GRIPP2 reporting checklists: Tools to improve reporting of patient and public involvement in research. BMJ, 358. https://doi.org/10.1136/bmj.j3453", "Staniszewska, S., Brett, J., Simera, I., Seers, K., Mockford, C., Goodlad, S., Altman, D. G., Moher, D., Barber, R., Denegri, S., Entwistle, A., Littlejohns, P., Morris, C., Suleman, R., Thomas, V., & Tysall, C. (2017). GRIPP2 reporting checklists: Tools to improve reporting of patient and public involvement in research. Research Involvement and Engagement, 3(1), 13. https://doi.org/10.1186/s40900-017-0062-2", "Wright, D., Foster, C., Amir, Z., Elliott, J., & Wilson, R. (2010). Critical appraisal guidelines for assessing the quality and impact of user involvement in research. Health Expectations, 13(4), 359\u2013368. https://doi.org/10.1111/j.1369-7625.2010.00607.x"]}

The study is funded by intramural funds of the QUEST Center for Responsible Research, Berlin Institute of Health, Charité - Universitätsmedizin Berlin

Related Organizations
Keywords

reporting on patient involvement, reporting on patient engagement, GRIPP2-SF, critical appraisal

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    This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
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    influence
    This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
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    impulse
    This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
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selected citations
These citations are derived from selected sources.
This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Citations provided by BIP!
popularity
This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
BIP!Popularity provided by BIP!
influence
This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Influence provided by BIP!
impulse
This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
BIP!Impulse provided by BIP!
views
OpenAIRE UsageCountsViews provided by UsageCounts
downloads
OpenAIRE UsageCountsDownloads provided by UsageCounts
1
Average
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16
8