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This Green Paper outlines recommendations for data use registers standards to be adopted by data custodian organisations. A data use register (also known as a data release register or list of approved projects) is a public record of how data is being used for research, by who and most importantly for what purpose and offers a demonstration of the value and benefit of using health data. The paper has been drafted following consultations and workshops with numerous organisations including health data research organisations and universities, data custodians and patient and public groups run between 25 March and 13 May 2021. We are now seeking comments and contributions from all stakeholders on the recommendations set out below to help finalise the standards and support adoption. Note: This paper is published on behalf of the UK Health Data Research Alliance.
data use; health data; transparency
data use; health data; transparency
| selected citations These citations are derived from selected sources. This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically). | 0 | |
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| influence This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically). | Average | |
| impulse This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network. | Average |
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