Powered by OpenAIRE graph
Found an issue? Give us feedback
image/svg+xml art designer at PLoS, modified by Wikipedia users Nina, Beao, JakobVoss, and AnonMoos Open Access logo, converted into svg, designed by PLoS. This version with transparent background. http://commons.wikimedia.org/wiki/File:Open_Access_logo_PLoS_white.svg art designer at PLoS, modified by Wikipedia users Nina, Beao, JakobVoss, and AnonMoos http://www.plos.org/ ZENODOarrow_drop_down
image/svg+xml art designer at PLoS, modified by Wikipedia users Nina, Beao, JakobVoss, and AnonMoos Open Access logo, converted into svg, designed by PLoS. This version with transparent background. http://commons.wikimedia.org/wiki/File:Open_Access_logo_PLoS_white.svg art designer at PLoS, modified by Wikipedia users Nina, Beao, JakobVoss, and AnonMoos http://www.plos.org/
ZENODO
Report . 2020
License: CC BY
Data sources: Datacite
image/svg+xml art designer at PLoS, modified by Wikipedia users Nina, Beao, JakobVoss, and AnonMoos Open Access logo, converted into svg, designed by PLoS. This version with transparent background. http://commons.wikimedia.org/wiki/File:Open_Access_logo_PLoS_white.svg art designer at PLoS, modified by Wikipedia users Nina, Beao, JakobVoss, and AnonMoos http://www.plos.org/
ZENODO
Report . 2020
License: CC BY
Data sources: ZENODO
image/svg+xml art designer at PLoS, modified by Wikipedia users Nina, Beao, JakobVoss, and AnonMoos Open Access logo, converted into svg, designed by PLoS. This version with transparent background. http://commons.wikimedia.org/wiki/File:Open_Access_logo_PLoS_white.svg art designer at PLoS, modified by Wikipedia users Nina, Beao, JakobVoss, and AnonMoos http://www.plos.org/
ZENODO
Report . 2020
License: CC BY
Data sources: Datacite
versions View all 2 versions
addClaim

BBMRI-ERIC ELSI Services & Research Q&A on COVID-19 & ELSI

Authors: Jahns, Roland; Lavitrano, Marialuisa; Chassang, Gauthier; Mayrhofer, Michaela Th.; Goisauf, Melanie; Adeniran, Ayodeji; Akyüz, Kaya; +2 Authors

BBMRI-ERIC ELSI Services & Research Q&A on COVID-19 & ELSI

Abstract

The world is facing an unprecedented public health challenge with the COVID-19 pandemic; this has necessitated numerous efforts being deployed by governments, health agencies and individual institutions – including in the biobanking community – to develop effective tests, toolkits, treatments and vaccines to stem its spread and help fight it. To achieve this goal, the collection, analysis and timely sharing of samples and related data becomes instrumental in collective global research efforts. Aligned to these efforts is the prevalence for automated data processing and digital technologies such as location data and contact tracing applications as part of the toolkits. In this respect, biobanks are important infrastructures for access to these samples and data. Besides availability, quality and technical infrastructures, also ethical, legal and societal issues (ELSI) are particularly crucial in this regard. Public health ethics, personal data protection, ethics of data sharing, protection of consent and vulnerability as well as compliance issues within international data sharing have gained urgency in COVID-19 research. Against this backdrop, BBMRI-ERIC ELSI Services & Research held a webinar that took a closer look at these issues. The webinar took place on April 24th, 2020; the recording is available here. This document not only answers the questions posed during the webinar but ventures into much detail on the topics raised as a result. It also showcases two examples from Germany (presented by Prof. Roland Jahns) and Italy (presented by Prof. Marialuisa Lavitrano), as well as a detailed commentary on contact-tracing-apps from a legal perspective (presented by Gauthier Chassang). The document thus lays the foundation for further discussion on ELSI and COVID-19 in the context of biobanking.

Keywords

biobanking, ELSI, SARS-CoV-2, broad consent, COVID-19, GDPR, medical research

  • BIP!
    Impact byBIP!
    selected citations
    These citations are derived from selected sources.
    This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
    0
    popularity
    This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
    Average
    influence
    This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
    Average
    impulse
    This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
    Average
    OpenAIRE UsageCounts
    Usage byUsageCounts
    visibility views 106
    download downloads 8
  • 106
    views
    8
    downloads
    Powered byOpenAIRE UsageCounts
Powered by OpenAIRE graph
Found an issue? Give us feedback
visibility
download
selected citations
These citations are derived from selected sources.
This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Citations provided by BIP!
popularity
This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
BIP!Popularity provided by BIP!
influence
This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Influence provided by BIP!
impulse
This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
BIP!Impulse provided by BIP!
views
OpenAIRE UsageCountsViews provided by UsageCounts
downloads
OpenAIRE UsageCountsDownloads provided by UsageCounts
0
Average
Average
Average
106
8
Green