Powered by OpenAIRE graph
Found an issue? Give us feedback
image/svg+xml art designer at PLoS, modified by Wikipedia users Nina, Beao, JakobVoss, and AnonMoos Open Access logo, converted into svg, designed by PLoS. This version with transparent background. http://commons.wikimedia.org/wiki/File:Open_Access_logo_PLoS_white.svg art designer at PLoS, modified by Wikipedia users Nina, Beao, JakobVoss, and AnonMoos http://www.plos.org/ ZENODOarrow_drop_down
image/svg+xml art designer at PLoS, modified by Wikipedia users Nina, Beao, JakobVoss, and AnonMoos Open Access logo, converted into svg, designed by PLoS. This version with transparent background. http://commons.wikimedia.org/wiki/File:Open_Access_logo_PLoS_white.svg art designer at PLoS, modified by Wikipedia users Nina, Beao, JakobVoss, and AnonMoos http://www.plos.org/
ZENODO
Other literature type . 2026
License: CC BY
Data sources: ZENODO
ZENODO
Conference object . 2026
License: CC BY
Data sources: Datacite
ZENODO
Conference object . 2026
License: CC BY
Data sources: Datacite
versions View all 2 versions
addClaim

Data Ethics in Practice: The European Health Data Space.

Authors: Ethical Data Initiative;

Data Ethics in Practice: The European Health Data Space.

Abstract

Data clinics are an interactive collaboration and teaching format designed to bridge theory and practice in the field of data governance and ethics. They run as part of the teaching program in the Chair for Philosophy and History of Science and Technology in the School of Social Sciences and Technology at the Technical University of Munich (TUM), as part of the activities of the Ethical Data Initiative (EDI). This poster shares pedagogical methods and results from the data clinic run in January 2026 as a TUM 'Project Week' exploring issues linked to secondary health data use within the European Health Data Space. It documents activities from the project week and illustrates the data clinic format, including by showing the kinds of analyses and proposals students produced in response to this concrete challenge. The ethical challenge for the clinic was provided by Gesundheit Österreich GmbH (Austrian National Public Health Institute). Project week activities were funded by a grant from the TUM Project Weeks Excellence Strategy. The poster sets out the data clinic format, the detail of the ethical challenge, activities undertaking during the project week, as well as key terms and selected results produced by the students on issues around public participation in aspects of decision-making processes around secondary health data.

Related Organizations
Keywords

Ethics, Data Science/ethics, EHDS, Patient Generated Health Data

  • BIP!
    Impact byBIP!
    selected citations
    These citations are derived from selected sources.
    This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
    0
    popularity
    This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
    Average
    influence
    This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
    Average
    impulse
    This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
    Average
Powered by OpenAIRE graph
Found an issue? Give us feedback
selected citations
These citations are derived from selected sources.
This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Citations provided by BIP!
popularity
This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
BIP!Popularity provided by BIP!
influence
This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Influence provided by BIP!
impulse
This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
BIP!Impulse provided by BIP!
0
Average
Average
Average