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Presentation . 2025
License: CC BY
Data sources: Datacite
ZENODO
Presentation . 2025
License: CC BY
Data sources: Datacite
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Measurement-level Data Sharing Workflow CHeBA Research Bank as a Use Case of Dementias Platform Australia (DPAU)

Authors: Chen, Rory;

Measurement-level Data Sharing Workflow CHeBA Research Bank as a Use Case of Dementias Platform Australia (DPAU)

Abstract

The Dementias Platform Australia (DPAU), established by the Centre for Healthy Brain Ageing (CHeBA), aims to accelerate dementia research by enhancing the findability, accessibility, interoperability, and reusability (FAIR) of data. As part of this, we developed a semi-automated measurement-level data sharing workflow using Python, REDCap, and R. Data from CHeBA s longitudinal cohort studies: Sydney Memory and Ageing Study, Sydney Centenarian Study, and Older Australian Twins Study, have been shared on >500 occasions since 2010. The data cover 1000s of variables from >100 measurements in domains such as sociodemographic, cognition, medical history and lifestyle surveys. With the onboarding onto DPAU, opportunities for automation and efficiencies were explored. Using Python, data files and variables are renamed following C-Surv Ontology, and metadata is extracted to create data dictionaries. REDCap is configured to capture study metadata and the project application process, including measurement-level data requests. Upon approval, Python extracts relevant data files for each project. R Shiny applications complement this through multiple dashboards tracking administrative workflows and provide tools for applicants to explore study metadata before submitting requests. R and Python are used to create data dictionaries and import data for REDCap. Detailed diagrams and real-time demonstration of the integrated workflow illustrate the reduced repetitive manual work, improved operational efficiency, streamlined reporting, and enhanced transparency of the workflow to the e-research community. The current system is highly customised and adaptation by other users may require significant effort, including a need for technical expertise. Additional work is required to ensure compliance and data security.

Keywords

Tools, Research Software

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selected citations
These citations are derived from selected sources.
This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Citations provided by BIP!
popularity
This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
BIP!Popularity provided by BIP!
influence
This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Influence provided by BIP!
impulse
This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
BIP!Impulse provided by BIP!
0
Average
Average
Average
Green