
Data access and usage in medical research – clinical trials in particular – have become the new “gold standard” in the entire health care domain (and beyond). Access to and usage of this data, however, bear the potential of several “moral hazards” in termsof responsibility and trust which jeopardize their very usefulnessand exacerbate long-standing critical tendencies in scientific research. Open access to trial data, and trans- parency of related processes, is seen as a response to these hazards,and a means for restoring key warran- ties of the respect of human dignity which characterize sound scientific practice as well as medical care. The conference brings together academics and practitioners in order to promote both the advancementof scientific research and the devel- opment of responsible practicesand sustainable solutions in health data processing.
Ethics, Data, Medical research, Data usage, FOS: Law, Clinical Trials Data, Data access, Law
Ethics, Data, Medical research, Data usage, FOS: Law, Clinical Trials Data, Data access, Law
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