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Event . 2025
License: CC BY SA
Data sources: ZENODO
ZENODO
Event . 2025
License: CC BY SA
Data sources: Datacite
ZENODO
Event . 2025
License: CC BY SA
Data sources: Datacite
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Data Access and Usage in Health Care: Toward Responsibility and Trust

Authors: De Gennaro, Ivo;

Data Access and Usage in Health Care: Toward Responsibility and Trust

Abstract

Data access and usage in medical research – clinical trials in particular – have become the new “gold standard” in the entire health care domain (and beyond). Access to and usage of this data, however, bear the potential of several “moral hazards” in termsof responsibility and trust which jeopardize their very usefulnessand exacerbate long-standing critical tendencies in scientific research. Open access to trial data, and trans- parency of related processes, is seen as a response to these hazards,and a means for restoring key warran- ties of the respect of human dignity which characterize sound scientific practice as well as medical care. The conference brings together academics and practitioners in order to promote both the advancementof scientific research and the devel- opment of responsible practicesand sustainable solutions in health data processing.

Related Organizations
Keywords

Ethics, Data, Medical research, Data usage, FOS: Law, Clinical Trials Data, Data access, Law

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    This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
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    popularity
    This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
    Average
    influence
    This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
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    impulse
    This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
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selected citations
These citations are derived from selected sources.
This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Citations provided by BIP!
popularity
This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
BIP!Popularity provided by BIP!
influence
This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Influence provided by BIP!
impulse
This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
BIP!Impulse provided by BIP!
0
Average
Average
Average