
This report presents the findings from the Public Survey on rare disease expertise, centers, and networks. The survey aimed to: Map expertise and centers dedicated to rare diseases and understand their key characteristics; Examine the criteria used for the recognition of rare disease centers; Explore existing collaboration between experts and between centers. This study was led by Rare Diseases International. The survey was developed in collaboration with a small group of RDI members and experts.
Rare Diseases, network, expertise, centers
Rare Diseases, network, expertise, centers
| selected citations These citations are derived from selected sources. This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically). | 0 | |
| popularity This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network. | Average | |
| influence This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically). | Average | |
| impulse This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network. | Average |
