D12.2 Citizen and Patient Perspectives on Oncogenomic Data Reuse
D12.2 Citizen and Patient Perspectives on Oncogenomic Data Reuse
This deliverable formulates ethical recommendations for a trustworthy framework for genomic data reuse in oncology based on the perspectives of patients, citizens, and Can.Heal professionals. It highlights areas where the values of the general public and professionals align, yet also where they might differ, indicating ethical points of discussion to be considered in the EU Cancer and Health Genomics Platform. The recommendations are addressed to any expert in oncogenomics, as well as EU and national health policymakers.
- Scienion (Germany) Germany
Ethics, Incidental Findings, cancer genomics, Patients, Research, data reuse, public health genomics, Recommendation, Trust, Personalized medicine, public engagement, EU4Health, citizens, Privacy, Stakeholder Participation, secondary finding, CAN.HEAL
Ethics, Incidental Findings, cancer genomics, Patients, Research, data reuse, public health genomics, Recommendation, Trust, Personalized medicine, public engagement, EU4Health, citizens, Privacy, Stakeholder Participation, secondary finding, CAN.HEAL
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