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ZENODO
Dataset . 2025
Data sources: ZENODO
ZENODO
Dataset . 2025
Data sources: Datacite
ZENODO
Dataset . 2025
Data sources: Datacite
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Caregiver Experiences after the Death of a Person with Dementia with Lewy Bodies: a Mixed-Methods Analysis

Authors: Armstrong, Melissa; Wollney, Easton; Dai, Yunfeng; Li, Zhigang; LaBarre, Brian; Sovich, Kaitlin; Jury, Hannah Fechtel; +10 Authors

Caregiver Experiences after the Death of a Person with Dementia with Lewy Bodies: a Mixed-Methods Analysis

Abstract

This repository contains data used for the PACE-DLB (Predicting ACcurately End-of-Life in Dementia with Lewy Bodies and Promoting Quality End-of-Life Experiences) study (NCT04829656) sub-analysis, "Caregiver Experiences after the Death of a Person with Dementia with Lewy Bodies: a Mixed-Methods Analysis." The manuscript associated with these data is currently in submission. The data set includes the data from the 3 month post-death study visits for the 73 caregivers who completed visits prior to the data lock on 2/14/2024 as well as some data from the last pre-death study visit. Post-death visits occurred a mean 3.5 months (SD 1.1, range 2-8) after the death of the person with dementia with Lewy bodies. The analysis focuses on the caregiver experience at the post-death visit but also includes measures relating to the caregiver experience at the last pre-death visit and the experiences of the person with dementia with Lewy bodies at that visit (as well as demographics). Specific variables are detailed in the included data dictionary. Post-death study visit data used for this analysis were collected between 10/15/2021 and 2/14/2024.

Keywords

Lewy Body Disease, Death, Caregivers, Alzheimer Disease, Dementia, Grief

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selected citations
These citations are derived from selected sources.
This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Citations provided by BIP!
popularity
This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
BIP!Popularity provided by BIP!
influence
This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Influence provided by BIP!
impulse
This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
BIP!Impulse provided by BIP!
0
Average
Average
Average