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Gap analysis report on digital ELSI services for cancer research, including the identification of two exemplar areas for tool development.

Authors: Borecky, Verena; Surya, Rohan; Ahmadlou, Nazila; Farjaminejad, Rosana; Stavropoulou, Charitini; Mayrhofer, Michaela Th.; Kozlakidis, Zisis;

Gap analysis report on digital ELSI services for cancer research, including the identification of two exemplar areas for tool development.

Abstract

Europe as a whole faces a significant cancer burden. While representing less than 10% of the global population, it is dealing with a quarter of all cancers, reflecting an increasingly ageing population with comorbidities, as well as significant and persistent social and healthcare provision inequalities. It is estimated that over 3.9 million Europeans were diagnosed with cancers in 2018 (immediately pre-pandemic) and that almost 2 million in the same year died from these diseases. A slight majority of cancer patients (55%) will gain a prolonged disease-free survival, and even cure, but big killers with a relatively low impact of treatment remain, such as lung cancer (20% of all cancer deaths), colorectal cancer, advanced breast cancer, and pancreatic cancer. To date, the ELSI services landscape in Europe remains highly fragmented and diverse. There exist individual Research Infrastructures (RIs), associations or institutions that have implemented innovative helpdesk components. These, however, tend to work within institutional remits (e.g., clinical trials, biobanking) or geographical premises (e.g., member countries) and not across entire domains, such as cancer. The European Missions, e.g., Mission on Cancer, signified a step-change in approach, unifying efforts across domains, and this is reflected in the approach of all canSERV WPs and partners. Deliverable 11.3 provides a gap analysis report on existing ELSI digital services for cancer research, and based on the above outcomes, the identification of two exemplar areas for tool development in the future, that will be complementing those ELSI services by empowering individuals, such as cancer patients, and society to manage their cancer pathway(s).

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    This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
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    popularity
    This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
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    influence
    This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
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    impulse
    This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
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selected citations
These citations are derived from selected sources.
This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Citations provided by BIP!
popularity
This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
BIP!Popularity provided by BIP!
influence
This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Influence provided by BIP!
impulse
This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
BIP!Impulse provided by BIP!
0
Average
Average
Average
Funded by
Related to Research communities
Cancer Research