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Other literature type . 2023
License: CC BY
Data sources: ZENODO
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Project deliverable . 2023
License: CC BY
Data sources: Datacite
ZENODO
Project deliverable . 2023
License: CC BY
Data sources: Datacite
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D1.1 Description of use cases

Authors: De Zegher, Isabelle; Lepik, Katrin; Lotman, Eno-Martin; Maasik, Mall; Norak, Kerli; Kannukene, Urmo; Plass, Markus; +1 Authors

D1.1 Description of use cases

Abstract

This deliverable clarifies the problem to be solved in AIDAVA, i.e. (1) develop a "data cleaning" machine with maximum automation in curation and publishing of personal healthcare data and (2) maximise engagement with the patients in the curation process of these data when automation is not possible. The deliverable then describes the 2 use cases for testing the prototype: (1) the first use case is hospital centric and will demonstrate feasibility of a federated "EU" breast cancer registry composed by interoperable extracts issued form multiples different sources from each of the evaluation sites; (2) the second use case is patient-centric and will demonstrate how patient data curated into an individual longitudinal health record can be reused for visualising of the patient record and for computing a cardiac risk score supporting physicians in monitoring risk for their patients. We will also explore the possibility of presenting the risk score to the patient. Finally, the deliverable provides more information on the metrics that will support assessment of the prototype and identify key elements to be taken into account when deploying the prototype across sites.

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Keywords

patient engagement, evaluation criteria, , Cardiovascular use case, Breast cancer use case, data sources

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selected citations
These citations are derived from selected sources.
This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Citations provided by BIP!
popularity
This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
BIP!Popularity provided by BIP!
influence
This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Influence provided by BIP!
impulse
This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
BIP!Impulse provided by BIP!
0
Average
Average
Average
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Cancer Research