The experience of inflammatory bowel disease patients with healthcare
Copyright policy )The experience of inflammatory bowel disease patients with healthcare
Abstract To assess inflammatory bowel disease (IBD) patients’ experience of chronic illness care and the relationship with demographic and healthcare-related characteristics. This cross-sectional survey used the Instrument to Evaluate the EXperience of PAtients with Chronic diseases (IEXPAC) questionnaire to identify parameters associated with a better healthcare experience for IBD patients. IEXPAC questionnaire responses are grouped into 3 factors - productive interactions, new relational model, and patient self-management, scoring from 0 (worst) to 10 (best experience). Scores were analyzed by bivariate comparisons and multiple linear regression models. Surveys were returned by 341 of 575 patients (59.3%, mean age 46.8 (12.9) years, 48.2% women). Mean (SD) IEXPAC score was 5.9 (2.0); scores were higher for the productive interactions (7.7) and patient self-management factors (6.7) and much lower for the new relational model factor (2.2). Follow-up by a nurse, being seen by the same physician, and being treated with a lower number of medicines were associated with higher (better) overall patient experience score, and higher productive interactions and self-management factor scores. A higher productive interactions score was also associated with patients receiving medication subcutaneously or intravenously. Higher new relational model scores were associated with follow-up by a nurse, affiliation to a patients’ association, receiving help from others for healthcare, a lower number of medicines and a higher educational level. In patients with IBD, a better overall patient experience was associated with follow-up by a nurse, being seen by the same physician, and being treated with a lower number of medicines.
Adult, Male, enfermedad crónica, Intestins - Inflamació - Aspectes psicològics, Otros calificadores::Otros calificadores::/psicología, humanos, CHUAC, ENFERMEDADES::afecciones patológicas, signos y síntomas::procesos patológicos::atributos de la enfermedad::enfermedad crónica, Otros calificadores::Otros calificadores::/estadística & datos numéricos, Inflammatory bowel disease, DISEASES::Pathological Conditions, Signs and Symptoms::Pathologic Processes::Disease Attributes::Chronic Disease, DISEASES::Digestive System Diseases::Gastrointestinal Diseases::Gastroenteritis::Inflammatory Bowel Diseases, Other subheadings::Other subheadings::/statistics & numerical data, inflammatory bowel disease, Malalties cròniques - Aspectes psicològics, Surveys and Questionnaires, Other subheadings::Other subheadings::/psychology, Humans, IEXPAC instrument, asistencia a largo plazo, mediana edad, Quality of Health Care, PSYCHIATRY AND PSYCHOLOGY::Behavior and Behavior Mechanisms::Attitude::Attitude to Health::Treatment Adherence and Compliance::Patient Satisfaction, Self-Management, Healthcare, modelos lineales, healthcare, relaciones profesional-paciente, Professional-Patient Relations, adulto, Pacients - Satisfacció - Estadístiques, Middle Aged, enfermedad inflamatoria intestinal, Inflammatory Bowel Diseases, Long-Term Care, Cross-Sectional Studies, Patient Satisfaction, Chronic Disease, Linear Models, ENFERMEDADES::enfermedades del sistema digestivo::enfermedades gastrointestinales::gastroenteritis::enfermedad inflamatoria intestinal, Female, PSIQUIATRÍA Y PSICOLOGÍA::conducta y mecanismos de la conducta::actitud::actitud ante la salud::cumplimiento y adherencia al tratamiento::satisfacción del paciente, estudios transversales, Research Article
Adult, Male, enfermedad crónica, Intestins - Inflamació - Aspectes psicològics, Otros calificadores::Otros calificadores::/psicología, humanos, CHUAC, ENFERMEDADES::afecciones patológicas, signos y síntomas::procesos patológicos::atributos de la enfermedad::enfermedad crónica, Otros calificadores::Otros calificadores::/estadística & datos numéricos, Inflammatory bowel disease, DISEASES::Pathological Conditions, Signs and Symptoms::Pathologic Processes::Disease Attributes::Chronic Disease, DISEASES::Digestive System Diseases::Gastrointestinal Diseases::Gastroenteritis::Inflammatory Bowel Diseases, Other subheadings::Other subheadings::/statistics & numerical data, inflammatory bowel disease, Malalties cròniques - Aspectes psicològics, Surveys and Questionnaires, Other subheadings::Other subheadings::/psychology, Humans, IEXPAC instrument, asistencia a largo plazo, mediana edad, Quality of Health Care, PSYCHIATRY AND PSYCHOLOGY::Behavior and Behavior Mechanisms::Attitude::Attitude to Health::Treatment Adherence and Compliance::Patient Satisfaction, Self-Management, Healthcare, modelos lineales, healthcare, relaciones profesional-paciente, Professional-Patient Relations, adulto, Pacients - Satisfacció - Estadístiques, Middle Aged, enfermedad inflamatoria intestinal, Inflammatory Bowel Diseases, Long-Term Care, Cross-Sectional Studies, Patient Satisfaction, Chronic Disease, Linear Models, ENFERMEDADES::enfermedades del sistema digestivo::enfermedades gastrointestinales::gastroenteritis::enfermedad inflamatoria intestinal, Female, PSIQUIATRÍA Y PSICOLOGÍA::conducta y mecanismos de la conducta::actitud::actitud ante la salud::cumplimiento y adherencia al tratamiento::satisfacción del paciente, estudios transversales, Research Article
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