
Taking care of a person at the end of life at home is difficult and challenging. In a qualitative study, the burdens experienced by informal caregivers as well as their coping strategies to face these burdens were investigated.Narrative interviews with 25 informal caregivers were conducted. Interviews were transcribed verbatim and analyzed using a constant comparative approach.Informal caregivers feel tired and overburdened, alone and abandoned, experience grief and fear, feel helpless and experience a feeling of having lost control over their own life. To cope with these stressful emotions, they actively seek help and support, inform themselves and acquire skills and competencies, talk to others, allow themselves time off and emphasize the positive and meaningful aspects of caring for someone at home.The burdens experienced by informal caregivers are highly subjective and depend on the coping strategies and the available resources. A main resource is the help and support provided by the informal social network.
Adult, Male, Terminal Care, Middle Aged, Caregivers, Cost of Illness, Health Care Surveys, Adaptation, Psychological, Humans, Female, Patient Care, Attitude to Health, Fatigue, Stress, Psychological
Adult, Male, Terminal Care, Middle Aged, Caregivers, Cost of Illness, Health Care Surveys, Adaptation, Psychological, Humans, Female, Patient Care, Attitude to Health, Fatigue, Stress, Psychological
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