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La enfermedad de Huntington infantil en la escuela

Authors: Fernández Hawrylak, María; Grau Rubio, Claudia;

La enfermedad de Huntington infantil en la escuela

Abstract

Hemos asumido el reto de dar respuesta a las necesidades socioeducativas y sanitarias derivadas de las Enfermedades Raras debido a que el alumnado con este tipo de enfermedades también constituye un grupo importante de población desde el punto de vista de los servicios sanitarios y socioeducativos. En esta comunicación se describen las secuelas asociadas a la Enfermedad de Huntington Juvenil, las necesidades educativas especiales, y la respuesta educativa adecuada a estas necesidades. Sus síntomas presentan desafíos únicos en los individuos afectados, a las personas que cuidan de ellos y a los diferentes profesionales que los atienden. Sin embargo, aunque la Enfermedad de Huntington Juvenil es rara, muchos de los retos diarios son similares a los de niños que tienen otros trastornos o discapacidades. Esperamos ayudar a las escuelas a tener una mejor comprensión de la variante juvenil de la Enfermedad de Huntington para que puedan ser capaces de apoyar al niño afectado y a sus familias.

Keywords

educación inclusiva, :PEDAGOGÍA [UNESCO], UNESCO::PEDAGOGÍA, enfermedad de Huntington juvenil

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selected citations
These citations are derived from selected sources.
This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Citations provided by BIP!
popularity
This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
BIP!Popularity provided by BIP!
influence
This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Influence provided by BIP!
impulse
This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
BIP!Impulse provided by BIP!
0
Average
Average
Average
Green