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PHR - Personal Health Records

Authors: Marques, Mike de Almeida;

PHR - Personal Health Records

Abstract

Nesta dissertação, pretende apresentar-seumaproposta baseadanumasoluçãoPHR (PHR-Personal Health Records) para resolver os problemas inerentes à crescente quantidade de informação de saúde que é gerada pelas instituições de saúde relativamente a cada indivíduo de forma independente e dispersa gerando "ilhas de informação" e "fragmentos de dados" [1]. O conceito PHR existe e tem potencial mas, as soluções desenvolvidas não seguem directrizes comuns, não existindo consenso entre os desenvolvedores destas soluções. Assim, é também objectivo deste trabalho apresentar uma lista de directrizes a seguir pelas aplicações PHR. Estas directrizes abrangem essêncialmente aspectos como o tipo de informações a ser contemplada, a segurança e confidencialidade dos registos e operações sobre eles efectuadas, gestão de acessos, serviços a disponibilizar e formas de acesso. É pretendida também, a elaboração de uma proposta de implementação de PHR global onde cada utente de um sistema de saúde, como o Sistema Nacional de Saúde, tenha à disposição uma conta PHR num contexto regional ou nacional à qual as instituições e profissionais de saúde tenham acesso. Como complemento prático da dissertação, foi também desenvolvido um protótipo daquilo que poderá ser o sistema pretendido e descrito no trabalho ou, pelo menos, umaprimeira abordagem. A elaboração desta dissertação, iniciou-se com a investigação dos conceitos em redor do tema e das soluções já desenvolvidas para o mercado, sendo que, estas aplicações irão servir de base para a concretização dos objectivos descritos. Este trabalho resume os desenvolvimentos já efectuados nesta área de investigação, descrevendo os problemas inerentes e os aspectos descurados.

In this dissertation, it is intended the presentation of a proposal solution based on PHR (PHR - Personal Healt Records) to solve the problems inherent in growing amount of health information that is generated by health agencies for each individual on an independent and dispersed way which generates "information islands" and "data fragments" [1]. The PHR concept exists and has potential, but the proposed solutions do not follow common guidelines, there is no consensus between the developers of these solutions. Thus, another objective of this work to prepare and submit a list of guidelines / standards that must be followed by applications PHR. These guidelines mainly cover aspects such as the type of information that must be met, the security and confidentiality of records and operations performed on them, access management, services and ways to provide access. It is also intended to prepare a proposal to implement a comprehensive PHR that each user of a health system, such as the National Health System will have at its disposal a PHR account a context that may be regional or national to which the institutions and health professionals may have access. To complement the practical work, we will also develop a prototype of what may be the intended system described in the work or, at least, a first approach. The preparation of this work, began with the research of the concepts around the subject and the solutions already developed for the market, being that these applications will provide the basis for achieving the above objectives. This paper summarizes the developments already made in this area of investigation, when describing the problems and issues neglected.

Country
Portugal
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Keywords

PHR (Personal health records) - Confidencialidade, Registos pessoais de saúde electrónicos - Portugal, Registo pessoal de saúde - Vantagens, Sistema Nacionalde Saúde - Portugal, PHR (Personal health records) - Gestão de acessos, PHR (Personal health records), Registo de saúde - Doente - Médico, PHR (Personal health records) - Segurança

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selected citations
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This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Citations provided by BIP!
popularity
This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
BIP!Popularity provided by BIP!
influence
This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Influence provided by BIP!
impulse
This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
BIP!Impulse provided by BIP!
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