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De-identification as public policy

Authors: Gilad L. Rosner;

De-identification as public policy

Abstract

Canada’s data privacy law, the Personal Information Protection and Electronic Documents Act (PIPEDA), does not require or incentivise de-identification of personal data for purposes of sharing or research. This regulatory lacuna puts Canadian national law at a disadvantage in contrast with the privacy regimes of other countries, such as the United Kingdom, Australia and the United States, all of whom have regulatory language requiring or incentivising de-identification by custodians of personal data. This paper is based on a report commissioned by the Office of the Privacy Commissioner of Canada in service of eventual reform of PIPEDA to include de-identification. The paper addresses terminology, definitions, key debates and policy in other jurisdictions. It recommends legal reform, specific regulatory actions, and investigation of emerging policy strategies and lists remaining open questions for the development of a national Canadian de-identification policy. Chief among these recommendations is a reorientation from a regulatory focus on ‘outputs’ (‘Is the dataset rendered anonymous?’) to a focus on ‘process’ (‘Has the data custodian taken proper steps to reduce identification and privacy risks?’). In part, this is based on a rejection of the possibility of ‘irreversible anonymisation’. Relatedly, the paper argues for requiring a risk management approach to de-identification and for the discouragement of the ‘release-andforget’ model of data disclosure, which relies only on data transformations while ignoring technical, physical, administrative and contractual controls.

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    popularity
    This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
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    influence
    This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
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    impulse
    This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
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Powered by OpenAIRE graph
Found an issue? Give us feedback
selected citations
These citations are derived from selected sources.
This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Citations provided by BIP!
popularity
This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
BIP!Popularity provided by BIP!
influence
This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Influence provided by BIP!
impulse
This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
BIP!Impulse provided by BIP!
2
Average
Average
Average
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