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Revista Brasileira de Ciências da Saúde
Article . 2015 . Peer-reviewed
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Paralisia Cerebral: Impacto no Cotidiano Familiar

Authors: Keila Okuda Tavares; Joseane Rodrigues da Silva Nobre; Thaisa Cristina Schwab de Almeida; Aneline Maria Ruedell;

Paralisia Cerebral: Impacto no Cotidiano Familiar

Abstract

Introducao: Um filho com diagnostico de Paralisia Cerebral acarreta mudancas estruturais e organizacionais na vida de uma familia. O diagnostico afeta o contexto familiar provocando conflitos, medo, incerteza e duvidas. Objetivo: Conhecer quais foram as mudancas ocorridas no cotidiano de maes que apresentam um(a) filho(a) com Paralisia Cerebral e as dificuldades enfrentadas no seu dia a dia como mae cuidadora. Material e Metodos: Trata-se de um estudo qualitativo, descritivo exploratorio. A populacao do estudo foi composta por 11 maes cuidadoras de criancas com Paralisia Cerebral e a coleta de dados foi realizada por meio de uma entrevista semiestruturada, baseada em duas perguntas norteadoras: (1) “Quais mudancas ocorreram no seu dia a dia depois que foi diagnosticado o problema do seu filho (a)?”; (2) “Quais as principais dificuldades que voce enfrenta por ser mae cuidadora de uma crianca com Paralisia Cerebral?”. As entrevistas foram gravadas e transcritas na integra para serem analisadas com o Metodo da Analise do Conteudo de Bardin. Resultados: Percebe-se a abdicacao das maes cuidadoras com relacao a vida social, profissional e ate mesmo pessoal em prol de seus filhos. Quanto as dificuldades vivenciadas, observam-se situacoes de preconceito, dificuldades de acessibilidade, transporte e de inclusao escolar. Esses empecilhos ocasionam uma sobrecarga fisica, psicologica e financeira da mae cuidadora. Conclusao: Compreender a percepcao das maes cuidadoras frente a essas adversidades e o primeiro passo para que os profissionais de saude possam desenvolver acoes, como as redes de apoio, por exemplo, que oferecam suporte psicologico e social a essas mulheres. DESCRITORES Paralisia Cerebral; Cuidadores. Familia; Relacoes Profissional-Familia.

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citations
This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Citations provided by BIP!
popularity
This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
BIP!Popularity provided by BIP!
influence
This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Influence provided by BIP!
impulse
This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
BIP!Impulse provided by BIP!
5
Average
Average
Average
gold