Parent Perspectives on Parent‐Mediated Intervention for Young Children With Down Syndrome
Copyright policy )Parent Perspectives on Parent‐Mediated Intervention for Young Children With Down Syndrome
ABSTRACTBackgroundParent‐mediated intervention (PMI) is a potentially scalable approach for tailored interventions in neurogenetic conditions like Down syndrome (DS). Because PMIs require ongoing parent engagement, they must be developed in alignment with the needs of intended users. The present study examined caregiver opinions and preferences to inform the development of syndrome‐informed interventions for children with DS.MethodParents of children with DS (n = 34) participated in focus groups discussing PMI. Interviews were transcribed and a thematic analysis was applied to code the data.ResultsThree themes were identified: advantages of PMI, disadvantages of PMI and preferred features of PMI. To align with parent preferences, future PMIs for children with DS should require a brief time commitment, blend intervention activities into daily routines and include family members in activities.ConclusionsFindings have implications for developing novel interventions to support early development in children with DS and other neurogenetic conditions.
- Colorado State University United States
- Università degli Studi di Padova (DISSGEA) Italy
- Prevention Research Center United States
- University of Padua Italy
- Pacific Institute For Research and Evaluation United States
Parents, Male, Adult, Child, Preschool, Humans, Infant, Female, Down syndrome; focus groups; intervention; parents, Down Syndrome, Focus Groups, Child, Article, Qualitative Research
Parents, Male, Adult, Child, Preschool, Humans, Infant, Female, Down syndrome; focus groups; intervention; parents, Down Syndrome, Focus Groups, Child, Article, Qualitative Research
selected citations These citations are derived from selected sources.This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).6 popularity This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.Top 10% influence This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).Average impulse This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.Top 10%
Citations provided by BIP!Popularity provided by BIP!