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Epilepsia
Article
License: pd
Data sources: UnpayWall
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Article . 2018
License: CC BY NC SA
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Epilepsia
Article . 2018 . Peer-reviewed
License: Wiley Online Library User Agreement
Data sources: Crossref
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Common data elements for epilepsy mobile health systems

Authors: Daniel M. Goldenholz; Robert Moss; David A. Jost; Nathan E. Crone; Gregory Krauss; Rosalind Picard; Chiara Caborni; +15 Authors

Common data elements for epilepsy mobile health systems

Abstract

SummaryObjectiveCommon data elements (CDEs) are currently unavailable for mobile health (mHealth) in epilepsy devices and related applications. As a result, despite expansive growth of new digital services for people with epilepsy, information collected is often not interoperable or directly comparable. We aim to correct this problem through development of industry‐wide standards for mHealth epilepsy data.MethodsUsing a group of stakeholders from industry, academia, and patient advocacy organizations, we offer a consensus statement for the elements that may facilitate communication among different systems.ResultsA consensus statement is presented for epilepsy mHealth CDEs.SignificanceAlthough it is not exclusive, we believe that the use of a minimal common information denominator, specifically these CDEs, will promote innovation, accelerate scientific discovery, and enhance clinical usage across applications and devices in the epilepsy mHealth space. As a consequence, people with epilepsy will have greater flexibility and ultimately more powerful tools to improve their lives.

Countries
United States, Australia
Keywords

common data elements, Clinical Sciences, 610, Clinical sciences, Neurodegenerative, seizure diary, Clinical Research, Terminology as Topic, Humans, Neurology & Neurosurgery, Common Data Elements, Epilepsy, Biomedical and Clinical Sciences, Neurosciences, 600, Telemedicine, Brain Disorders, Networking and Information Technology R&D (NITRD), mHealth, Neurology, standards, epilepsy, devices

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    popularity
    This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
    Top 10%
    influence
    This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
    Top 10%
    impulse
    This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
    Top 10%
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selected citations
These citations are derived from selected sources.
This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Citations provided by BIP!
popularity
This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
BIP!Popularity provided by BIP!
influence
This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Influence provided by BIP!
impulse
This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
BIP!Impulse provided by BIP!
32
Top 10%
Top 10%
Top 10%
Green
hybrid