
pmid: 27095504
Patient registries are datasets containing information on patients with a particular disease or patients who are undergoing a specific treatment.Our objective was to search for and catalog the types of registries being used in dermatology and investigate their characteristics and uses.We searched Google, the Registry of Patient Registries, Orphanet, and ClinicalTrials.gov to compile a list of dermatology disease registries. We also conducted a literature review on the uses of dermatology registries using PubMed.We identified 48 dermatology patient registries, with 23 distinct diseases represented. We also identified 11 registries used for postmarketing surveillance of skin disease.Our search was limited to registries in English.Registries are commonly used for the study of rare dermatologic diseases and for postsurveillance monitoring of systemic therapies in more common dermatologic diseases, such as psoriasis.
Male, Quality Control, Clinical Trials as Topic, Databases, Factual, Dermatology, Skin Diseases, United States, Humans, Female, Registries, Dermatologists
Male, Quality Control, Clinical Trials as Topic, Databases, Factual, Dermatology, Skin Diseases, United States, Humans, Female, Registries, Dermatologists
| selected citations These citations are derived from selected sources. This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically). | 25 | |
| popularity This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network. | Top 10% | |
| influence This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically). | Top 10% | |
| impulse This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network. | Top 10% |
