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Musculoskeletal Care
Article . 2021 . Peer-reviewed
License: CC BY
Data sources: Crossref
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Musculoskeletal Care
Article
License: CC BY
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Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study

Authors: Bethan Jones; Andrew Hunt; Sarah Hewlett; Diana Harcourt; Emma Dures;

Rheumatology patients’ perceptions of patient activation and the Patient Activation Measure: A qualitative interview study

Abstract

AbstractIntroductionAn important aspect of self‐management is patient activation (the skills, abilities and confidence someone uses to actively manage their health). The dominant method of capturing patient activation is the Patient Activation Measure (PAM) which has been integrated into many aspects of clinical practice in musculoskeletal care. However, limited research has investigated how rheumatology patients understand and perform patient activation, and how closely their perceptions align with the PAM.MethodsSeventeen patients from two rheumatology departments in South West England participated in semi‐structured interviews at two timepoints. They discussed how they actively managed their health and their views on the PAM. Data on activation were analysed using framework analysis and data on the PAM were analysed using content analysis.ResultsParticipants self‐managed with determination, finding ways to make small, sustainable behaviour changes and effectively navigate the healthcare system. They reported the value of knowing what self‐management techniques suited them individually and reported benefitting from positive perceptions of their own health and good social support. Participants noted that the PAM did not always capture the fluctuating nature of their inflammatory arthritis and the collaborative nature of healthcare.ConclusionsPatients' perceptions and experiences of patient activation covered a wide range of skills, behaviours and beliefs. However, these are not always captured by the PAM. Therefore, its use as a clinical tool is best accompanied by dialogue with patients to understand their self‐management.

Keywords

Nursing (miscellaneous), Arthritis, Self-Management, Rehabilitation, Physical Therapy, Sports Therapy and Rehabilitation, Rheumatology, Formerly Health & Social Sciences, Humans, Orthopedics and Sports Medicine, Chiropractics, Patient Participation, Qualitative Research

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selected citations
These citations are derived from selected sources.
This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Citations provided by BIP!
popularity
This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
BIP!Popularity provided by BIP!
influence
This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Influence provided by BIP!
impulse
This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
BIP!Impulse provided by BIP!
12
Top 10%
Average
Top 10%
Green
hybrid