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UCL Discovery
Article . 2023
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Perceived Anxiety in Family Caregivers of Individuals with Autism Spectrum Disorder, Down Syndrome and Williams Syndrome during the Lockdown of the First COVID-19 Wave in Spain.

Authors: Martínez-Castilla, P; Campos, R; Samson, A C; Van Herwegen, J; Dukes, Daniel;

Perceived Anxiety in Family Caregivers of Individuals with Autism Spectrum Disorder, Down Syndrome and Williams Syndrome during the Lockdown of the First COVID-19 Wave in Spain.

Abstract

El confinamiento durante la primera olea-da de COVID-19 en España se ha relacionado con niveles ma-yores de ansiedad en la población general. Sin embargo, no se ha estudiado el impacto emocional en los cuidadores de personas con trastornos del neurodesarrollo (TND).Se distribuyó un cuestionario a las organizacio-nes que prestan apoyo a las personas con TND y sus fami-lias. Se analizaron los datos de los cuidadores de personas con trastorno del espectro autista (TEA) (N=17), síndrome de Down (N=25) y síndrome de Williams (N=18).Los cuidadores informaron de preocupa-ciones relacionadas con la situación de pandemia y confi-namiento. Los cuidadores de personas con TEA mostraron mayor preocupación sobre los conflictos familiares. Los tres grupos informaron de niveles de ansiedad más altos duran- te el confinamiento. Predijeron la ansiedad el trastorno de ansiedad previo y el diagnóstico del hijo/a.Los predictores de ansiedad en los cuida-dores de individuos con TND difieren de los reportados pre-viamente en la población general española. Los resultados sugieren que el confinamiento fue especialmente duro para las familias de personas con TEA. Las políticas públicas de-berían considerar las necesidades de las personas con TND y sus cuidadores para minimizar las consecuencias negativas de la pandemia.

The lockdown during the first wave of COV- ID-19 in Spain has been related to higher levels of anxiety in the general population. However, the emotional impact on Spanish caregivers of individuals with neurodevelopmental disorders (NDD) has not been studied so far.

Keywords

Williams Syndrome, Spain / epidemiology, Autism Spectrum Disorder, Down syndrome, Williams syndrome, Caregiver anxiety, 150, COVID-19, COVID-19 in Spain, autism spectrum disorder, Caregivers / psychology, COVID-19 / psychology, 128.37, Anxiety, Anxiety / epidemiology, Caregivers, Spain, Communicable Disease Control, Humans, Down Syndrome, Autism Spectrum Disorder / psychology, Williams Syndrome / psychology

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selected citations
These citations are derived from selected sources.
This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Citations provided by BIP!
popularity
This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
BIP!Popularity provided by BIP!
influence
This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Influence provided by BIP!
impulse
This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
BIP!Impulse provided by BIP!
0
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