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How to Study Interactions between Challenging Behaviour and Space? Exploring the Relevance of Routinely Collected Data

Exploring the Relevance of Routinely Collected Data
Authors: Berit Ann Roos; Mark Mobach; Ann Heylighen;

How to Study Interactions between Challenging Behaviour and Space? Exploring the Relevance of Routinely Collected Data

Abstract

Doel. Dit onderzoek heeft als doel manieren te vinden om te bestuderen hoe verstandelijk gehandicapten met uitdagend gedrag omgaan met de ruimte, zonder hun dagelijks leven te beïnvloeden. Achtergrond. Onderzoek naar ruimte dat beter aansluit bij de behoeften van deze personen is een uitdaging om uit te voeren, omdat ze moeite kunnen hebben om zich verbaal uit te drukken en extreem gevoelig zijn voor zintuiglijke prikkels. Daarom kan het verzamelen van gegevens door onderzoekers storend en opdringerig zijn en is grote voorzichtigheid geboden. Het aanboren van bestaande gegevens kan een veelbelovend alternatief zijn. Woonzorgorganisaties verzamelen routinematig gegevens over bewoners tijdens hun reguliere werkprocessen, zoals persoonlijke informatie en incidentregistratie. Ook routinematig verzamelde ruimtelijke gegevens, zoals tekeningen en reparatierapporten, kunnen nuttig zijn. Deze studie onderzoekt hoe routinematig verzamelde gegevens (RCD) inzicht kunnen geven in de manier waarop bewoners omgaan met de ruimte, zonder hun dagelijks leven te beïnvloeden. Methoden. We reflecteren op de mogelijkheden van het gebruik van RCD (gerelateerd aan bewoner of ruimte) op basis van verkenningen in de context van een casestudy in een Nederlandse faciliteit voor zeer intensieve zorg. De gegevens werden geanalyseerd om algemene patronen te identificeren, zoals locaties met een hoge dichtheid aan incidenten/reparaties, en de eerste bevindingen werden geverifieerd door middel van een controle bij het personeel. Resultaten. De geanalyseerde RCD's geven een elementair en relevant inzicht in incidenten en reparaties die verband houden met uitdagend gedrag. De meeste gegevens waren echter niet volledig of relevant voor analyse. Daarom bespraken we de RCD met het personeel en pas daarna was het mogelijk om conclusies te trekken over de relevantie van de RCD en de interacties tussen bewoners en de ruimte. Conclusies. Alleen in combinatie met een ex-tended benadering van het controleren van leden lijkt het gebruik van RCD relevant. RCD hebben op zichzelf weinig betekenis. Maar de combinatie van RCD met member checking lijkt inzicht te geven in de interactie tussen bewoners en ruimte, zonder in te grijpen in het dagelijks leven van de bewoners.

Aim. This study aims to identify ways that allow studying how intellectually impaired persons showing challenging behaviour interact with space, without impacting their daily lives. Back-ground. Research about space that better suits these persons’ needs is challenging to conduct, since they may have difficulties expressing themselves verbally and are extremely sensitive to-wards sensory stimuli. Therefore, researchers collecting data may be disturbing and intrusive, and requires great caution. Tapping into existing data may be a promising alternative. Residential care organisations routinely collect data about residents during their regular work processes, such as personal information and incident registration. Also useful may be routinely collected spatial data, such as drawings and repair reports. This study explores how routinely collected data (RCD) can provide insight into how residents interact with space, without impacting their daily lives. Methods. We reflect on the possibilities of using RCD (related to resident or space) based on explorations in the context of a case study at a Dutch very-intensive-care facility. The data were analysed to identify general patterns, such as locations with a high density of incidents/repairs and verified initial findings by member checking with staff. Results. The RCD analysed provide a basic and relevant insight into incidents and repairs connected to challenging behaviour. However, most data were neither complete or relevant for analysis. Therefore, we dis-cussed the RCD were with staff and only then it was possible to draw conclusions regarding relevance of RCD and the residents-space interactions. Conclusions. Only in conjunction with an ex-tended approach on member checking the use of RCD seems relevant. RCD have little meaning of their own. But the combination of RCD with member checking seems to provide insight into the interaction between residents and space, without interfering with the residents’ daily lives.

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Keywords

routinely collected data, ruimte, architecture, Health & Wellbeing, intellectual impairment, space, uitdagend gedrag, SDG 3 - Good Health and Well-being, ledencontrole, routinematig verzamelde gegevens, member checking, challenging behaviour, architectuur, verstandelijke beperkingen

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citations
This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Citations provided by BIP!
popularity
This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
BIP!Popularity provided by BIP!
influence
This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Influence provided by BIP!
impulse
This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
BIP!Impulse provided by BIP!
1
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