
Dementia is and will increasingly become a workplace issue. Out of the 800,000 people living with dementia in the UK, approximately 7.5% of them are under the age of 65 and may still be working when diagnosed. Furthermore, an increasing number of family caregivers will be in employment while caring for a family member living with dementia. There is an urgent need to further understand the impact of dementia on the workforce and to develop innovative research-informed supports to improve the economic and social well-being of people affected by dementia. The Working with Dementia (WWD) Network Plus will create a research network that includes the views and real-world experiences of people living or working with dementia and other non-academic stakeholders, such as employer representatives, in the research process. The aim is to shift our current understanding of working with dementia, drive positive change, and open new horizons to enhance labour market experiences for those affected by dementia. By doing so, we aspire to play a pivotal role in alleviating the social and financial inequalities associated with dementia in society. Working with Dementia research requires an integrated understanding of the individual, organisational, societal, and economic factors at play to develop innovative and impactful research solutions. We will achieve this through the following objectives: Establish a Transdisciplinary Research Network: Create and grow an inclusive transdisciplinary research network to address the identified issues by assembling experts from diverse academic fields, individuals with experiences of living and working with dementia, health and social care, third-sector experts, and employer stakeholders, fostering collaboration and knowledge exchange. Collaboratively Shape the Research Agenda: Explore existing research and real-world experiences to inform and shape the research agenda, ensuring alignment with the Network's aims and objectives. Empower Researchers: Provide comprehensive support and resources for career development, including mentorship, training, and knowledge-sharing platforms, to enhance research capabilities and sustain careers in dementia and work research. Support and Fund Innovative Research Projects: Seed fund and promote innovative transdisciplinary research projects aimed at enhancing labour market experiences for individuals living with dementia and their family caregivers, encouraging a culture of collaboration and innovation. Drive Societal Impact: Engage in creative dissemination strategies, policy advocacy, and public engagement efforts, as well as fund innovation projects to ensure research findings reach a wide audience, drive positive change in societal perceptions, policies, and practices related to dementia and employment, and contribute to a more inclusive and supportive labour market environment. Our transdisciplinary approach will allow us to work collaboratively with these groups to cultivate integrated knowledge of working with dementia, shape the aims of the network, and ultimately develop impactful research solutions. We firmly believe that research should translate into change in the real world, benefiting individuals, organisations, and society. The WWD Network Plus will ultimately improve the lives of those affected by dementia by advancing societal understanding of dementia and work and improving work-based support available to individuals and organisations.
Our programme focuses on the care needs of adults living at home with chronic health problems or disabilities, and seeks sustainable solutions to the UK's contemporary 'crisis of care'. It is distinctive in investigating sustainability and wellbeing in care holistically across care systems, work and relationships; addresses disconnection between theorisations of care in different disciplines; and locates all its research in the context of international scholarship, actively engaging with policy partners. It will fill knowledge gaps, contribute new theoretical ideas and data analyses, and provide useful, accurate evidence to inform care planning, provision and experience. It develops and critically engages with policy and theoretical debates about: care infrastructure (systems, networks, partnerships, standards); divisions of caring labour/the political economy of care (inequalities, exploitation); care ethics, rights, recognition and values (frameworks, standards, entitlements, wellbeing outcomes); care technologies and human-technological interactions; and care relations in emotional, familial, community and intergenerational context. Our team comprises 20 scholars in 7 universities, linked to an international network spanning 15 countries. Our programme comprises integrative activities, in which the whole team works together to develop a new conceptual framework on sustainable care and wellbeing, and two Work Strands, each with 4 linked projects, on 'Care Systems' & 'Care Work & Relationships'. 'Care Systems' will: (i) study prospects, developments and differentiation in the four care systems operating in England, N. Ireland, Scotland & Wales, comparing their approaches to markets, privatisation and reliance on unpaid care; (ii) model costs and contributions in care, covering those of carers and employers as well as public spending on care; (iii) assess the potential of emerging technologies to enhance care system sustainability; and (iv) analyse, in a dynamic policy context, migrant care workers' role in the sustainability of homecare. 'Care Work & Relationships' will: (i) develop case studies of emerging homecare models, and assess their implications for sustainable wellbeing; (ii) focus on carers who combine employment with unpaid care, filling gaps in knowledge about the effectiveness of workplace support and what care leave and workplace standard schemes can contribute to sustainable care arrangements; (iii) explore how care technologies can be integrated to support working carers, ensuring wellbeing outcomes across caring networks; and (iv) investigate care 'in' and 'out of' place, as systems adapt or come under pressure associated with population diversity and mobility. Each project will collaborate with our international partners. These scholars, in 26 collaborating institutions, will ensure we learn from others about ways of understanding, measuring or interpreting developments in how care is organised and experienced, and keep up to date with latest research and scholarship. Our capacity-building strategy will build future scholarly expertise in the study of sustainability and wellbeing in care, and ensure our concepts, methods, and research findings achieve international standards of excellence. Universities in our partnership are contributing 5 UK & 12 overseas PhD studentships, enabling us to form an international early career scholar network on sustainable care, supported by our senior team and partners. Our impact strategy, led by Carers UK, involves leading UK and international policy partners. Informing policy, practice and debate, we will co-produce analyses and guidance, enhance data quality, promote good practice and engage decision-makers, policymakers, practitioners in the public, private and voluntary sectors, carers, people with care needs, and the media. Our Advisory Board of leading academics, policy/practice figures and opinion formers will guide all our work.