Mensen met een licht verstandelijke beperking (lvb) ervaren meer eenzaamheid dan mensen zonder lvb. In het COLLELO project werken onderzoekers uit de sociale en geesteswetenschappen samen met mensen met lvb en hun (in)formele netwerken aan een (online) lerende gemeenschap die de eenzaamheid van mensen met lvb wil begrijpen en verminderen.

When women with a migration background visit the general practitioner with complaints related to harmful cultural practices, like depression caused by pressure to marry, doctor and patient must decide together on the course of action. The researchers investigate their moral dilemmas and develop a gender and culture-sensitive ethical framework that supports them in this decision-making process.

Providing healthcare in conflict settings is a morally complex endeavour. Classical forms of ethics suggest that general principles, such as respecting autonomy, can offer guidance. Yet, principle-based ethics fails to adequately address power inequalities, experiences of moral distress, and conflict dynamics. As a young, innovative discipline, care ethics starts normative reflection with studying actual care practices and the moral challenges people experience. This project examines the potential of care ethics to research and normatively reflect on how healthcare workers in conflict settings negotiate the moral complexity in their work, and the capacity of this approach to provide context-sensitive moral guidance.

Contextual therapy is based on the assumption that the quality of relationships is rooted in the balance of fairness in reciprocal care. An investigation into the foundational theory, the therapy practice and the experiences of clients sheds light on the applicability and the transferability.

While the need for integrating palliative care (PC) services into heart failure (HF) care has been well recognised, as of yet this integration lacks behind, especially when compared to cancer care. Currently, only 5-7% of patients with HF utilise PC services, due to a focus on optimising therapy and an unpredictable disease trajectory with exacerbations which hampers prognosis. As a result, many symptoms and concerns that are not directly related to HF are not recognised and undertreated and patients are often referred to PC services only at the very end of their lives. The RAPHAEL consortium sets out to take the next big step in integrating PC into HF care by integrating the RAPHAEL palliative care approach in existing HF care pathways. This flexible and patient centred approach starts with the identification of multidimensional symptoms and concerns, prioritise needs with patient and informal carer and formulate a proactive care plan. The symptoms and concerns will be monitored by the patient at home using the PAL@HEART application. The app can be used to evaluate interventions, support communication and earl identify new or increasing needs. As a result, the care needs of each individual patient with HF are addressed faster and better, improving their quality of life and autonomy. Moreover, this will lead to a reduction in emergency hospitalisations, unburdening the healthcare system and reducing costs. The RAPHAEL project sets out to adapt the RAPHAEL approach to HF care within a European context and test and validate its (cost-)effectiveness via a feasibility and large-scale evaluation study performed in 7 EU countries, the UK and Switzerland. It brings together experts in palliative care, cardiology, and primary care as well as professional organisations and patient representatives. Together the RAPHAEL consortium is uniquely situated to demonstrate the (cost-)effectiveness of the RAPAHEL approach and launch its implementation in Europe and beyond.