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Publication . Report . 2014

BioMedBridges Ethical Governance Framework (Report)

Suhr, Stephanie; Smee, Carol;
Open Access  
Published: 03 Sep 2014
Publisher: Zenodo
Abstract
The objective of the BioMedBridges project is to better enable researchers to access data, increasing its utility with the ultimate goal of benefiting society, for example by facilitating new discoveries in health research and by allowing reanalysis of expensive, rare or unrepeatable investigations, while continuing to protect the interests of research participants with regard to their privacy and confidentiality. The BioMedBridges Ethical Governance Framework sets out policies for the project that specifically relate to ethical and regulatory issues with regard to the access of data used within the project. The aim of the framework is to enable the BioMedBridges project to operate within agreed terms with respect to participant consent, ethics committee approvals and national regulations, ensuring researchers supply and access data based on a common ethical framework focussing on specific issues that are key to the development and operation of BioMedBridges. The BioMedBridges Ethical Governance Framework as presented in Annex 1 to this report was developed by the Independent External Ethics Advisor and the Ethical Governance Committee and was approved by the Executive Steering Committee of the project. The latest, up-to-date version of the Ethical Governance Framework is available at http://www.biomedbridges.eu/deliverables/16.
Subjects

BioMedBridges, ethics, ethical governance, data integration, data sharing, ELSI

Funded by
EC| BIOMEDBRIDGES
Project
BIOMEDBRIDGES
Building data bridges between biological and medical infrastructures in Europe
  • Funder: European Commission (EC)
  • Project Code: 284209
  • Funding stream: FP7 | SP4 | INFRA
Related to Research communities
EGI Federation
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