Actions
  • shareshare
  • link
  • cite
  • add
add
Publication . Other literature type . 2014

The BioMedBridges Ethical Governance Framework

Carol Smee; Bartha Knoppers; Irene Schlünder; Ruth Chadwick; Christian Gluud; Kimmo Pitkänen; Stephanie Suhr;
Open Access
Published: 02 Oct 2014
Publisher: Zenodo
Abstract
This document sets out policies for the BioMedBridges project that specifically relate to ethical and regulatory issues with regard to the storage and access of data. The objective of the BioMedBridges project is to better enable researchers to access data, increasing its utility with the ultimate goal of benefiting society, for example by facilitating new discoveries in health research and by allowing re-analysis of expensive, rare or unrepeatable investigations, while continuing to protect the interests of research participants with regard to their privacy and confidentiality.
Subjects

BioMedBridges, ethics, sensitive data, ethical governance, personally identifiable data, ELSI

Funded by
EC| BIOMEDBRIDGES
Project
BIOMEDBRIDGES
Building data bridges between biological and medical infrastructures in Europe
  • Funder: European Commission (EC)
  • Project Code: 284209
  • Funding stream: FP7 | SP4 | INFRA
Related to Research communities
EGI Federation
Download from
lock_open
ZENODO
Other literature type . 2014
Providers: ZENODO
moresidebar