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Other literature type . 2020
License: CC BY
Data sources: ZENODO
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De-identification Guidance

Authors: Portage COVID-19 Working Group; Kristi Thompson; Erin Clary; Lucia Costanzo; Beth Knazook; Nick Rochlin; Felicity Tayler; +9 Authors
Abstract

The guidance below is intended to help Canadian researchers minimize disclosure risk when sharing data collected from human participants. If you use any of the following techniques to anonymize your data, please include this information in your documentation and README file. For transparency, it should be clear how the dataset was modified to protect study participants. 

Keywords

COVID-19 Research Data Management; De-identification guidance

34 references, page 1 of 4

1. Alder, Steve. “What is Considered PHI Under HIPAA Rules?” HIPAA Journal, December 28, 2017. https://www.hipaajournal.com/considered-phi-hipaa/.

2. Benschop, Thijs, and Matthew Welch. “Statistical Disclosure Control for Microdata: A Practice Guide for sdcMicro.” International Household Survey Network. Accessed August 10, 2020. https://sdcpractice.readthedocs.io/en/latest/index.html.

3. Clunie, David A. “DicomCleaner™.” PixelMed Publishing™. Accessed July 16, 2020. http://www.dclunie.com/pixelmed/software/webstart/DicomCleanerUsage.html.

4. Documenting the Now. “DocNow/hydrator.” GitHub. Accessed August 4, 2020. https://github.com/DocNow/hydrator.

5. Documenting the Now. “DocNow/twarc.” GitHub. Accessed August 4, 2020. https://github.com/docnow/twarc.

6. El Emam, Khaled, and Fida Kamal Dankar. “Protecting Privacy Using k-Anonymity.” Journal of the American Medical Informatics Association 15, no. 5 (September 2008): 627-637. https://doi.org/10.1197/jamia.M2716.

7. Elliot, Mark, Elaine Mackey, Kieron O'Hara, and Caroline Tudor. The Anonymisation DecisionMaking Framework. UK Anonymisation Network (UKAN). University of Manchester. 2016. https://ukanon.net/ukan-resources/ukan-decision-making-framework/.

8. “Genetic privacy.” [Editorial]. Nature 493 (January 24, 2013): 451. https://doi.org/10.1038/493451a.

9. Global Alliance for Genomics & Health. Genomic Toolkit: Regulatory & Ethics Toolkit. Toronto, ON: Global Alliance for Genomics and Health. Accessed July 20, 2020. https://www.ga4gh.org/genomic-data-toolkit/regulatory-ethics-toolkit/.

10. Government of Canada (Canadian Institutes of Health Research, the Natural Sciences and Engineering Research Council of Canada, and the Social Sciences and Humanities Research Council). Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans. December 2018. https://ethics.gc.ca/eng/policy-politique_tcps2-eptc2_2018.html.

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    This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
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citations
This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Citations provided by BIP!
popularity
This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
BIP!Popularity provided by BIP!
influence
This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Influence provided by BIP!
impulse
This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
BIP!Impulse provided by BIP!
views
OpenAIRE UsageCountsViews provided by UsageCounts
downloads
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