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Solidarity and Data Access: Challenges and Potentialities

Authors: Tava, Francesco;

Solidarity and Data Access: Challenges and Potentialities

Abstract

This paper provides an account of the challenges and potentialities of a solidarity-sustained approach to data access and governance. To do that, it offers an infraethical understanding of solidarity that describes it as a structural moral enabler able to sustain collective action and risk taking. The paper ends with a brief reference to health data access as a possible case study to test this approach.

Part of the conference panel 'Brave New Worlds? Ethics in Theory and Practice in Public Data Provision' (Felix Ritchie, Elizabeth Green, Francesco Tava and Stergios Aidinlis). Special Track 13 - Data Governance in the Public Interest

Keywords

Philosophy, data access, infraethics, Cognitive Neuroscience, solidarity, Formerly Health & Social Sciences, distributed morality, Psychology (miscellaneous), Digital Futures, Social Science Research Group

Taddeo, M. (2009). Defining Trust and e-Trust: Old Theories and New Problems. Journal of Technology and Human Interaction, 5, 2, 23-35. doi:10.4018/jthi.2009040102; Taddeo, M. (2010). Modelling Trust in Artificial Agents, a First Step toward the Analysis of e-Trust. Minds and Machines, 20, 2, 243-257. doi:10.1007/s11023-010-9201-3; Turilli, M., Floridi, L. (2009). The Ethics of Information Transparency. Ethics and Information Technology, 11, 2, 105-112. doi: 10.1007/s10676-009-9187-9; Wagenaar, H. & Prainsack B. 2020. The New Normal: The World after COVID- 19. [OpenAIRE]

A Blog in Four Parts. Retrieved form https://medium.com/@hendrik.wagenaar/ the-new- normal-the-world-after-covid-19-201189e22545.

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  • citations
    This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
    1
    popularity
    This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
    Average
    influence
    This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
    Average
    impulse
    This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
    Average
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citations
This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Citations provided by BIP!
popularity
This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
BIP!Popularity provided by BIP!
influence
This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Influence provided by BIP!
impulse
This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
BIP!Impulse provided by BIP!
1
Average
Average
Average
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