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PATIENT AND PUBLIC INVOLVEMENT AND ENGAGEMENT IN RESEARCH - A "HOW TO" GUIDE FOR RESEARCHERS

Authors: Raphaela Kaisler; Benjamin Missbach;

PATIENT AND PUBLIC INVOLVEMENT AND ENGAGEMENT IN RESEARCH - A "HOW TO" GUIDE FOR RESEARCHERS

Abstract

In this project, the Ludwig Boltzmann Gesellschaft (LBG) Open Innovation in Science Center invited a multi-stakeholder group consisting of researchers from multiple disciplines, citizen scientists, youth and patient advocates to co-create a guide ‘How to’ meaningfully involve patients and the public in research. In a series of consecutive workshops, the interactions between researchers and the public and patients, e.g. building trustful relationships and communication with patients, and the project steering structures enabling active involvement of patients ant the public in research were discussed. As a result of these workshops, the ‘How to’ Guide for Researchers was co-developed to support the implementation of public and patient involvement (PPIE). It will further inform funding criteria for future PPIE activities and fosters a sustainable and meaningful implementation of involvement activities in research across disciplines.

Keywords

stakeholder involvement, Public and patient involvement and engagement, meaningful involvement, co-creation

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  • citations
    This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
    2
    popularity
    This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
    Average
    influence
    This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
    Average
    impulse
    This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
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visibility
download
citations
This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Citations provided by BIP!
popularity
This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
BIP!Popularity provided by BIP!
influence
This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Influence provided by BIP!
impulse
This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
BIP!Impulse provided by BIP!
views
OpenAIRE UsageCountsViews provided by UsageCounts
downloads
OpenAIRE UsageCountsDownloads provided by UsageCounts
2
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