publication . Report . 2016

BioMedBridges: External Independent Ethics Advisors Report

Smee, Carol;
Open Access
  • Published: 11 Feb 2016
Abstract
The BioMedBridges project better enables researchers to access a wide range of data across different disciplines and allows re-analysis of datasets, some of which will have been generated through rare, expensive or unrepeatable investigations, thereby ensuring maximum utility of these datasets and facilitating new discoveries in health research. However, the sharing of data generated through the use of human material brings about ethical challenges concerning the protection of research participant privacy and confidentiality. To address this, a comprehensive ethical governance structure was put in place, including an Ethical Governance Committee consisting of ex...
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Subjects
ACM Computing Classification System: ComputingMilieux_LEGALASPECTSOFCOMPUTINGComputingMilieux_THECOMPUTINGPROFESSION
free text keywords: ethical governance, ethics, biomedbridges, sensitive data, open data, ethical governance, ethics, biomedbridges, sensitive data, open data
Communities
  • EGI Federation
  • Instruct-ERIC
Funded by
EC| BIOMEDBRIDGES
Project
BIOMEDBRIDGES
Building data bridges between biological and medical infrastructures in Europe
  • Funder: European Commission (EC)
  • Project Code: 284209
  • Funding stream: FP7 | SP4 | INFRA
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Report . 2016
Provider: ZENODO
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