To donate, or not to donate, that is the question: Latino insights into brain donation
Copyright policy )To donate, or not to donate, that is the question: Latino insights into brain donation
AbstractIntroductionLatinos are underrepresented in brain autopsy research on Alzheimer's disease and related dementias (ADRD). The study's purpose is to identify Latinos’ attitudes about brain donation (BD) to inform methods by which researchers can increase autopsy consent.MethodsForty Latinos (mean age: 59.4 years) completed a semi‐structured interview and were presented with educational information about BD. Participants completed a questionnaire assessing their understanding of BD and willingness to donate their brain for research.ResultsAmong participants, there was near unanimous support for BD to study ADRD after hearing educational information. However, prior to the information presented, participants reported a lack of knowledge about BD and demonstrated a possibility that misunderstandings about BD may affect participation.DiscussionWhile nearly all study participants agree that donating is beneficial for research and for future generations, the lack of BD information must be addressed to help support positive attitudes and willingness for participation.
- University of California, San Francisco United States
- University of California, San Diego United States
Aging, Health Knowledge, Attitudes, Practice, Biological Psychology, 150, Hispanic, Neurodegenerative, Acquired Cognitive Impairment (rcdc), Alzheimer's Disease, 8.3 Policy, Clinical Research (rcdc), Aging (rcdc), Brain Disorders (rcdc), Surveys and Questionnaires, 1103 Clinical Sciences (for), Dementia (rcdc), Psychology, Minority Health, 32 Biomedical and Clinical Sciences (for-2020), Neurosciences (rcdc), Neurodegenerative (rcdc), Practice, Humans (mesh), Alzheimer's Disease (rcdc), 52 Psychology (for-2020), Health Knowledge, Brain, Hispanic or Latino, Alzheimer's disease, Middle Aged, 3209 Neurosciences (for-2020), Neurological, 5202 Biological Psychology (for-2020), Minority Health (rcdc), Behavioral and Social Science (rcdc), and research governance (hrcs-rac), Tissue and Organ Procurement, Clinical Sciences, 610, Geriatrics (science-metrix), Hispanic or Latino (mesh), and research governance, Brain (mesh), Surveys and Questionnaires (mesh), autopsy, brain donation, Clinical Research, Practice (mesh), Behavioral and Social Science, Middle Aged (mesh), Acquired Cognitive Impairment, Humans, Latinos, qualitative analyses, Latinos/Hispanic, 3202 Clinical Sciences (for-2020), Biomedical and Clinical Sciences, Neurological (hrcs-hc), Neurosciences, Alzheimer's Disease including Alzheimer's Disease Related Dementias (AD/ADRD), 3202 Clinical sciences (for-2020), ethics, 1109 Neurosciences (for), Brain Disorders, Geriatrics, Tissue and Organ Procurement (mesh), 5202 Biological psychology (for-2020), Attitudes, Dementia, Alzheimer's Disease including Alzheimer's Disease Related Dementias (AD/ADRD) (rcdc)
Aging, Health Knowledge, Attitudes, Practice, Biological Psychology, 150, Hispanic, Neurodegenerative, Acquired Cognitive Impairment (rcdc), Alzheimer's Disease, 8.3 Policy, Clinical Research (rcdc), Aging (rcdc), Brain Disorders (rcdc), Surveys and Questionnaires, 1103 Clinical Sciences (for), Dementia (rcdc), Psychology, Minority Health, 32 Biomedical and Clinical Sciences (for-2020), Neurosciences (rcdc), Neurodegenerative (rcdc), Practice, Humans (mesh), Alzheimer's Disease (rcdc), 52 Psychology (for-2020), Health Knowledge, Brain, Hispanic or Latino, Alzheimer's disease, Middle Aged, 3209 Neurosciences (for-2020), Neurological, 5202 Biological Psychology (for-2020), Minority Health (rcdc), Behavioral and Social Science (rcdc), and research governance (hrcs-rac), Tissue and Organ Procurement, Clinical Sciences, 610, Geriatrics (science-metrix), Hispanic or Latino (mesh), and research governance, Brain (mesh), Surveys and Questionnaires (mesh), autopsy, brain donation, Clinical Research, Practice (mesh), Behavioral and Social Science, Middle Aged (mesh), Acquired Cognitive Impairment, Humans, Latinos, qualitative analyses, Latinos/Hispanic, 3202 Clinical Sciences (for-2020), Biomedical and Clinical Sciences, Neurological (hrcs-hc), Neurosciences, Alzheimer's Disease including Alzheimer's Disease Related Dementias (AD/ADRD), 3202 Clinical sciences (for-2020), ethics, 1109 Neurosciences (for), Brain Disorders, Geriatrics, Tissue and Organ Procurement (mesh), 5202 Biological psychology (for-2020), Attitudes, Dementia, Alzheimer's Disease including Alzheimer's Disease Related Dementias (AD/ADRD) (rcdc)
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