publication . Article . Other literature type . 2009

disability and survival in duchenne muscular dystrophy

Kohler, M; Clarenbach, C F; Bahler, C; Brack, T; Russi, E W; Bloch, K E;
Open Access
  • Published: 01 Mar 2009 Journal: Journal of Neurology, Neurosurgery & Psychiatry, volume 80, pages 320-325 (issn: 0022-3050, Copyright policy)
  • Publisher: BMJ
  • Country: Switzerland
BACKGROUND: Duchenne muscular dystrophy (DMD) leads to progressive impairment of muscle function, respiratory failure and premature death. Longitudinal data on the course of physical disability and respiratory function are sparse. OBJECTIVES: To prospectively assess physical impairment and disability, respiratory function and survival in DMD patients over several years in order to describe the course of the disease with current care. METHODS: In 43 patients with DMD, aged 5-35 years, yearly assessments of physical disability by the Duchenne muscular dystrophy physical Impairment and Dependence on care (DID) score ranging from 9 (no disability) to 80 (complete de...
free text keywords: Clinic for Pneumology, Center for Integrative Human Physiology, 570 Life sciences; biology, 610 Medicine & health, Surgery, Psychiatry and Mental health, Clinical Neurology, Neuromuscular disease, medicine.disease, medicine, Physical disability, FEV1/FVC ratio, business.industry, business, Respiratory function, Respiratory failure, Duchenne muscular dystrophy, Physical therapy, medicine.medical_specialty, Disease, Vital capacity
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