publication . Other literature type . Thesis . 2014 . Embargo end date: 01 Jan 2014

Patient reported outcomes in view of symptom experience of late effects and self-management of adult long-term survivors after allogeneic haematopoietic stem cell transplantation - a mixed methods study

Kirsch, Monika;
Open Access English
  • Published: 01 Jan 2014
  • Publisher: University of Basel
  • Country: Switzerland
Even years after allogeneic stem cell transplantation, recipients face a continuing risk of developing serious late effects. Previous studies have focused on the pathophysiological understanding of late effects, as well as on treatment and disease-related prediction of long-term post-transplant complications. In recent years, patient-reported outcomes (PROs) have been recognized as an invaluable source of information on the evolution of patients’ conditions. To date, however, few studies have used PRO data to focus on patients’ perspectives of late effects, symptom experiences or self-management strategies. Indeed, at the time of our preliminary research, no PRO...
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Thesis . 2014
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Other literature type . 2014
Provider: Datacite
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