Family matters: The experiences and opinions of family members of persons with (severe) or profound intellectual disabilities

Doctoral thesis English OPEN
Luijkx, Jorien;
(2016)
  • Publisher: Rijksuniversiteit Groningen
  • Subject: To be checked by Faculty

“I love my sister, but sometimes I don’t”. This is one of the statements made in the study focused on the experiences of family members of people with (profound) intellectual (and multiple) disabilities (both of individuals living in a residential facility as persons li... View more
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    1.2 Outline of the thesis ................................................................................7 How Parents Experience the Quality of Support: A Survey in Residential Care ..................................................................................................................9 2.2.1 Participants and setting ..................................................................14 2.3.2 Client Characteristics .....................................................................20 2.3.3 Overall Rate of Quality of Support ................................................23 2.3.4 Scores per Subsection on Quality of Support ................................23 2.3.5 Perceived Importance Per Subsection............................................24 2.3.6 Factors Related to Rated Quality of Support .................................24 3.2.1 Participants and setting ..................................................................35 4.2.4 Data collection: time use app .........................................................57 5.3.2 Overview of negative and positive impacts on mothers and fathers .................................................................................................................80

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