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Living with heart failure: perspectives of ethnic minority families

perspectives of ethnic minority families
Authors: Mahdi Shamali; Birte Østergaard; Hanne Konradsen;

Living with heart failure: perspectives of ethnic minority families

Abstract

Background The family perspective on heart failure (HF) has an important role in patients’ self-care patterns, adjustment to the disease and quality of life. Little is known about families’ experiences of living with HF, particularly in ethnic minority families. This study describes the experiences of Iranian families living with HF as an ethnic minority family in Denmark. Methods In this descriptive qualitative study, we conducted eight face-to-face joint family interviews of Iranian patients with HF and their family members living in Denmark. We used content analysis with an inductive approach for data analysis. Results We identified three categories: family daily life, process of independence and family relationships. Families were faced with physical restrictions, emotional distress and social limitations in their daily lives that threatened the patients’ independence. Different strategies were used to promote independence. One strategy was normalisation and avoiding the sick role; another strategy was accepting and adjusting themselves to challenges and limitations. The independence process itself had an impact on family relationships. Adjusting well to the new situation strengthened the relationship, while having problems in adjustment strained the relationship within the family. Conclusions This study highlights the process of independence as perceived by families living with HF. It is crucial to both families and healthcare professionals to maintain a balance between providing adequate support and ensuring independence when dealing with patients with HF. Understanding patients’ stories and their needs seems to be helpful in gaining this balance.

Keywords

Adult, Male, Health Knowledge, Attitudes, Practice, Denmark, Iran, Heart Failure/diagnosis, Interviews as Topic, Cost of Illness, Activities of Daily Living, Adaptation, Psychological, Ethnicity, Diseases of the circulatory (Cardiovascular) system, Humans, Minority Health, Adaptation, Heart Failure and Cardiomyopathies, Qualitative Research, Minority Groups, Ethnic Groups/psychology, Aged, Illness Behavior, Heart Failure, Cultural Characteristics, Minority Health/ethnology, Health Knowledge, Minority Groups/psychology, Middle Aged, Denmark/epidemiology, Health Knowledge, Attitudes, Practice/ethnology, Iran/ethnology, Practice/ethnology, Attitudes, RC666-701, Psychological, Female, Family Relations

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    selected citations
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    This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
    18
    popularity
    This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
    Top 10%
    influence
    This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
    Top 10%
    impulse
    This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
    Top 10%
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selected citations
These citations are derived from selected sources.
This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Citations provided by BIP!
popularity
This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
BIP!Popularity provided by BIP!
influence
This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Influence provided by BIP!
impulse
This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
BIP!Impulse provided by BIP!
18
Top 10%
Top 10%
Top 10%
Green
gold