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Scholarship@Western
Other literature type . 2025
License: CC BY NC
Disability and Rehabilitation
Article . 2025 . Peer-reviewed
Data sources: Crossref
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“My child is completely underestimated”: Canadian parents’ perspectives on implementing an accessible language comprehension assessment for non-speaking children with cerebral palsy

Authors: Juno, Coan-Brill; Jodi, Friesen; Jessica, Kay; Frances Aileen, Costigan; Tom, Chau; Johanna, Geytenbeek; Kristine, Stadskleiv; +6 Authors

“My child is completely underestimated”: Canadian parents’ perspectives on implementing an accessible language comprehension assessment for non-speaking children with cerebral palsy

Abstract

Reliable assessment of language comprehension is difficult for children with significant speech and motor limitations. The Computer-Based instrument for Low motor Language Testing (C-BiLLT) was designed for children with cerebral palsy (CP) and speech and motor limitations. A Canadian English version (C-BiLLT-CAN) has been validated. However, early investigation identified feasibility challenges necessitating further exploration. This study aimed to understand parents' perceived barriers and facilitators to implementing the C-BiLLT-CAN in the Canadian clinical context.Seven focus groups were conducted synchronously online with 16 parents from five Canadian provinces/territories. Transcripts were analyzed using semi-deductive thematic analysis, framing results within the Consolidated Framework for Implementation Research (CFIR).Parents unanimously expressed interest in making the C-BiLLT-CAN clinically available. Facilitators and barriers were discussed under five themes. Key facilitators included the unique design, standardized nature, and potential flexibility of the C-BiLLT-CAN. Barriers involved the inability to accommodate all children, the potential for unintended assessment impacts, and clinics' readiness and willingness to prioritize implementation.This study contributes new knowledge surrounding the assessment needs of parents of children with CP and speech and motor limitations. Alongside findings from a parallel clinician study, results will inform adaptations to the C-BiLLT-CAN to facilitate implementation.

Keywords

cerebral palsy, non-speaking, assessment, end-user engagement, parent perspectives, Communication Sciences and Disorders, Speech Pathology and Audiology, language comprehension

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selected citations
These citations are derived from selected sources.
This is an alternative to the "Influence" indicator, which also reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Citations provided by BIP!
popularity
This indicator reflects the "current" impact/attention (the "hype") of an article in the research community at large, based on the underlying citation network.
BIP!Popularity provided by BIP!
influence
This indicator reflects the overall/total impact of an article in the research community at large, based on the underlying citation network (diachronically).
BIP!Influence provided by BIP!
impulse
This indicator reflects the initial momentum of an article directly after its publication, based on the underlying citation network.
BIP!Impulse provided by BIP!
1
Average
Average
Average
Green