The Burden Endured by Caregivers of Patients With Morquio A Syndrome

Article English OPEN
Christian J. Hendriksz MD ; Christine Lavery ; Mahmut Coker MD ; Sema Kalkan Ucar MD ; Mohit Jain PhD ; Lisa Bell PhD ; Christina Lampe MD (2014)
  • Publisher: SAGE Publishing
  • Journal: Journal of Inborn Errors of Metabolism and Screening (issn: 2326-4594)
  • Related identifiers: doi: 10.1177/2326409814540872
  • Subject: Medicine (General) | R5-920

This international survey performed by direct personal interview or mail evaluated the global burden among primary caregivers of patients with Morquio A syndrome. Collected outcomes included self-reported time spent on caregiving, proportion of daily activities (from th... View more
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