Seeking consent to genetic and genomic research in a rural Ghanaian setting: A qualitative study of the MalariaGEN experience

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Tindana, Paulina; Bull, Susan; Amenga-Etego, Lucas; de Vries, Jantina; Aborigo, Raymond; Koram, Kwadwo; Kwiatkowski, Dominic; Parker, Michael;
  • Publisher: Springer Nature
  • Journal: BMC Medical Ethics,volume 13,issue 1,pages15-15 (issn: 1472-6939, eissn: 1472-6939)
  • Publisher copyright policies & self-archiving
  • Related identifiers: doi: 10.1186/1472-6939-13-15, pmc: PMC3441464
  • Subject: Africa | Research Article | R723-726 | Genomic research | Consent | Research ethics | Medical philosophy. Medical ethics | Ghana | Health Policy | Genetic research | Health(social science) | Issues, ethics and legal aspects | Qualitative research

<p><strong>Background:</strong> Seeking consent for genetic and genomic research can be challenging, particularly in populations with low literacy levels, and in emergency situations. All of these factors were relevant to the MalariaGEN study of genetic factors influenc... View more