Développement de mesures rapportées par les patients atteints de maladies neuromusculaires génétiques

Doctoral thesis French OPEN
Dany , Antoine;
(2016)
  • Publisher: HAL CCSD
  • Subject: rehabilitation | rééducation et réadaptation fonctionnelles | qualité de vie | psychometrics | [ SDV.SPEE ] Life Sciences [q-bio]/Santé publique et épidémiologie | neuromuscular diseases | maladies neuromusculaires | quality of life | Mesures rapportées par les patients | PhD | Patient outcome assessment | validation psychométrique

Due to their rarity genetic neuromuscular diseases (NMDs) have been neglected for a long time. Currently, there are few treatments available for NMDs and they are still symptomatic. The care is thus focus on the support and the prevention of health-related functional li... View more
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