Anticipated stigma and blameless guilt: mothers' evaluation of life with the sex-linked disorder, hypohidrotic ectodermal dysplasia (XHED)

Article English OPEN
Clarke, Angus John;
(2016)

Practical experience of a genetic disorder may influence how parents approach reproduction, if they know their child may be affected by an inherited condition. One important aspect of this practical experience is the stigmatisation which family members may experience or... View more
  • References (34)
    34 references, page 1 of 4

    Ablon, J., 1984. Little People in America: the Social Dimensions of Dwarfism. Praeger Publishers, New York.

    Arribas-Ayllon, M., Sarangi, S., Clarke, A., 2011. Genetic Testing: Accounts of Autonomy, Responsibility and Blame. Routledge, London.

    Barlo€sius, E., Philips, A., 2015. Felt stigma and obesity: introducing the generalized other. Soc. Sci. Med. 130, 9e15.

    Boardman, F., 2014a. Knowledge is power? the role of experiential knowledge in genetically 'risky' reproductive decisions. Sociol. Health Illn. 36, 137e150.

    Boardman, F., 2014b. The expressivist objection to prenatal testing: the experiences of families living with genetic disease. Soc. Sci. Med. 107, 18e25.

    Clarke, A., 1991. Is non-directive genetic counselling possible? Lancet 338, 998e1001.

    Clarke, A., 1997. Prenatal population screening. Paradigms and perspectives. In: Harper, P.S., Clarke, A. (Eds.), Genetics, Society and Clinical Practice. Bios Scientific Publishers, Oxford, pp. 119e140 (Chapter 9).

    Clarke, A., 2013. Stigma, self-esteem and reproduction: talking with men about life with hypohidrotic ectodermal dysplasia. Sociology 47 (5), 887e905.

    Clarke, A., Phillips, D.I.M., Brown, R., Harper, P.S., 1987. Clinical aspects of X-linked hypohidrotic ectodermal dysplasia. Arch. Dis. Child. 62, 989e996.

    Emmet, Dorothy, 1966. Rules, Roles & Relations. Macmillan, London.

  • Related Research Results (1)
  • Metrics
Share - Bookmark