'Why don't they tell me straight, why allocate it?' The struggle to make sense of participation in a randomised controlled trial

Article English OPEN
Featherstone, Katie; Donovan, Jenny L.;

Randomised controlled trials are the acknowledged ‘gold standard’ method of evaluating the effectiveness of treatments, but little is known about how and why patients decide to participate in trials nor how much they understand about trial design. In this study, in-dept... View more
  • References (31)
    31 references, page 1 of 4

    Alderson, P. E(1996). Equipoise as a means of managing MeTdical Ethics, 22, 135-139.

    uncertainty: Personal, communal and proxy. Journal of Appelbaum, P.S., Roth, L.H., Lidz, C.W., Benson, P., & Cresearch and the theraputic misconception. Hastings Center Winslade, W. (1987). False hopes and best data: Consent to EBevan, E. G., Chee, L. C., McGhee, S. M., & McInnes, G. T.

    Report, 20-24.

    (1993). Patients attitudes to participation in clinical trials.

    British Journal of Clinical Pharmacology, 35, 204-207.

    \par, & Burgess, R. G. (1982). The unstructured interview as a conversation. In R. G. Burgess (Ed.), Fieid research: A source book and field manual (pp. 107-110). London: Routledge.

    Cassileth, B. R., Lusk, E. J., Miller, D. S., & Hurwitz, S. (1982).

    Attitudes toward clinical trials among patients and the public. Journal of the American Medical Association, 248, 790-968.

    (1998). Doing nothing is no choice: lay constructions of treatment decision-making among women with early-stage breast cancer. Social Science and Medicine, 20(1), 71-95.

    Daugherty, C., Ratain, M. J., Grochowski, E., Stocking, C., Kodish, E., Mick, R., & Siegler, M. (1995). Perceptions of cancer patients and their physicians involved in phase I trials. Journal of Clinical Oncology, 13, 1062-1072.

  • Related Organizations (7)
  • Metrics
Share - Bookmark