Does the well-being of individuals with Down syndrome and dementia improve when using life story books and rummage boxes? A randomised single case series experiment

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Crook, N. ; Adams, M. ; Shorten, N. ; Langdon, Peter E. (2015)

Background: This study investigated whether a personalised life story book and rummage box enhanced well-being and led to changes in behaviour for people with Down syndrome (DS) who have dementia. \ud \ud Materials & Methods: A randomised single-case series design was used with five participants who had Down syndrome and a diagnosis of dementia. Participants were invited to take part in three conditions at random a) life story book, b) rummage box and c) no intervention condition. \ud \ud Results: The two reminiscence conditions were significantly associated with enhanced well-being as compared to the no-intervention condition. However, for one participant, the life story book was associated with significantly higher well-being, while for another participant, the rummage box was associated with significantly higher well-being, suggesting some participants may prefer one method over another. \ud \ud Conclusions: Personalised life story books and rummage boxes are associated with higher levels of well-being for people with DS and dementia.
  • References (37)
    37 references, page 1 of 4

    Bigby, C. (2010). A five-country comparative review of accommodation support policies for older people with intellectual disability. Journal of Policy and Practice in Intellectual Disabilities, 7, 3-15. doi: 10.1111/j.1741- 1130.2010.00242.x

    Bittles, A. H., Bower, C., Hussain, R., & Glasson, E. J. (2007). The four ages of Down syndrome. European Journal of Public Health, 17, 221-225.

    Bradford Dementia Group. (2005). Evaluating dementia care: the Dementia Care Mapping method (8th Ed). Bradford: University of Bradford.

    Brooker, D. (2005). Dementia care mapping: a review of the research literature. The Gerontologist, 45 (suppl 1), 11-18.

    Finnamore, T., & Lord, S. (2007). The use of dementia care mapping in people with learning disability and dementia. Journal of Intellectual Disability Research, 11, 157-165.

    Fraser, M. B., & Mitchell, A. (1876). Kalmuc idiocy: report of a case with autopsy with notes on sixty-two cases. The Journal of Mental Science, 22, 169-179.

    Glasson, E. J., Sullivan, S. G., Hussain, R., Petterson, B. A., Montgomery, P. D., & Bittles, A. H. (2003). Comparative survival advantage of males with Down syndrome. American Journal of Human Biology, 15, 192-195.

    Hewitt, H. (1998). Life story books for people with learning disabilities. Nursing Times, 94, 61-63.

    Hewitt, H. (2000). Life story books for people with profound intellectual disabilities (ID): Issues of care and identity. Journal of Intellectual Disability Research, 48, 477-477.

    Holland, A. J., Hon, J., Huppert, F. A., & Stevens, F. (2000). Incidence and course of dementia in people with Down's syndrome: findings from a population-based study. Journal of Intellectual Disability Research, 44, 138-146.

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